Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: June 6, 2022

  1. Home>
  2. 2022>
  3. June>
  4. 6
Positive Data Available on NX-2127 for CLL
Pexels / Pixabay

Positive Data Available on NX-2127 for CLL

  • Post author:Jessica Lynn
  • Post published:June 6, 2022
  • Post category:Chronic Lymphocytic Leukemia

On May 26, 2022, biopharmaceutical company Nurix Therapeutics, Inc. ("Nurix") shared via news release that positive data was available from an ongoing Phase 1a dose escalation study. Within the study,…

Continue Reading Positive Data Available on NX-2127 for CLL
Study of the Week: Scientists Discover the Cause of Misophonia
source: pixabay.com

Study of the Week: Scientists Discover the Cause of Misophonia

  • Post author:James Moore
  • Post published:June 6, 2022
  • Post category:Misophonia

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: Scientists Discover the Cause of Misophonia
Could Topical Progesterone Treat Retinitis Pigmentosa?
https://unsplash.com/photos/ES60LMf18KU

Could Topical Progesterone Treat Retinitis Pigmentosa?

  • Post author:Jessica Lynn
  • Post published:June 6, 2022
  • Post category:Retinitis pigmentosa

In April 2022, Dr. Adrián Alambiaga successfully defended his doctoral thesis at CEU Cardenal Herrera University. His thesis centered around the exploration of progesterone as a way to stop cell…

Continue Reading Could Topical Progesterone Treat Retinitis Pigmentosa?
43-Year-Old Shares His Near-Death Experience With Lyme Carditis From Lyme Disease

43-Year-Old Shares His Near-Death Experience With Lyme Carditis From Lyme Disease

  • Post author:Trudy Horsting
  • Post published:June 6, 2022
  • Post category:Lyme Disease

Eric Miller was diagnosed with Lyme carditis, which is a very rare complication that can arise from Lyme disease. He is a 43-year-old who works at a boarding school in…

Continue Reading 43-Year-Old Shares His Near-Death Experience With Lyme Carditis From Lyme Disease
New Study Data on NVG-111 for MCL and CLL
source: pixabay.com

New Study Data on NVG-111 for MCL and CLL

  • Post author:Kendall Mason
  • Post published:June 6, 2022
  • Post category:Chronic Lymphocytic Leukemia/Mantle Cell Lymphoma

According to a press release that can be found on AP News, new data have been released on a potential treatment - called NVG-111 - for both mantle cell lymphoma…

Continue Reading New Study Data on NVG-111 for MCL and CLL
Apraxia Appreciation Day Named by Connecticut Mayor Thanks to Activism From Mother and Child
source: pixabay.com

Apraxia Appreciation Day Named by Connecticut Mayor Thanks to Activism From Mother and Child

  • Post author:Trudy Horsting
  • Post published:June 6, 2022
  • Post category:Apraxia

Rhiley Fitch just turned five years old on May 10th. She is diagnosed with a condition called apraxia, which is a rare motor speech disorder. Rhiley is determined to learn…

Continue Reading Apraxia Appreciation Day Named by Connecticut Mayor Thanks to Activism From Mother and Child
Tango 2 and Kawasaki Disease: Their Two Daughters Have Potentially Fatal Diseases

Tango 2 and Kawasaki Disease: Their Two Daughters Have Potentially Fatal Diseases

  • Post author:Rose Duesterwald
  • Post published:June 6, 2022
  • Post category:Kawasaki syndrome

  On January 9th, Jacob Wiley was preparing to see his three-year-old daughter Adelaide in the hospital. It was a day that Jacob and his wife Ashley will never forget.…

Continue Reading Tango 2 and Kawasaki Disease: Their Two Daughters Have Potentially Fatal Diseases

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info