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Daily Archives: September 26, 2022

Home » Archives for September 26, 2022
Study of the Week: CAR-T Cell Therapy for Autoimmune Diseases?
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Study of the Week: CAR-T Cell Therapy for Autoimmune Diseases?

  • Post author:James Moore
  • Post published:September 26, 2022
  • Post category:Lupus

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: CAR-T Cell Therapy for Autoimmune Diseases?
Teen with NPC Becomes Prom Queen for her Birthday
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Teen with NPC Becomes Prom Queen for her Birthday

  • Post author:Jessica Lynn
  • Post published:September 26, 2022
  • Post category:Niemann-Pick Disease/Niemann-Pick Type C Disease

  It has been four years since Amaria Granger, now age 14, was diagnosed with a rare disease called Niemann-Pick disease type C (NPC). Since being diagnosed with NPC, Amaria…

Continue Reading Teen with NPC Becomes Prom Queen for her Birthday
With Sickle Cell Disease, a 9 to 5 Job is No Longer Routine
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With Sickle Cell Disease, a 9 to 5 Job is No Longer Routine

  • Post author:Rose Duesterwald
  • Post published:September 26, 2022
  • Post category:Sickle cell anemia/Sickle Cell Disease

  Wunmi Bakare described her illness to Essence as a continuous tug-of-war. Balancing sickle cell disease with a nine to five job and trying to stay the course. Then there…

Continue Reading With Sickle Cell Disease, a 9 to 5 Job is No Longer Routine
Duke Earns Recognition as Dystonia Center of Excellence
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Duke Earns Recognition as Dystonia Center of Excellence

  • Post author:James Moore
  • Post published:September 26, 2022
  • Post category:Dystonia

According to a story from neurology.duke.edu, Duke University has recently been recognized as a Center of Excellence for Dystonia treatment by the Tyler's Hope for a Dystonia Cure Foundation. This…

Continue Reading Duke Earns Recognition as Dystonia Center of Excellence
More Diverse Blood Donors are Needed to Support Patients with Sickle Cell Disease
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More Diverse Blood Donors are Needed to Support Patients with Sickle Cell Disease

  • Post author:Jessica Lynn
  • Post published:September 26, 2022
  • Post category:Sickle Cell Disease

  Did you know that September is National Sickle Cell Awareness Month? During this month, various stakeholders come together to share the stories of those affected by sickle cell disease,…

Continue Reading More Diverse Blood Donors are Needed to Support Patients with Sickle Cell Disease

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X-Linked Hypophosphatemia: Unnderstanding this Hereditary, Progressive, and Lifelong Condition


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Catalyst’s LEMS Aware Podcast Helps Connect Patients

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STUDY OF THE WEEK

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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RARE CLASSROOM

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most mysterious diseases and conditions. This series is an opportunity to learn the basics about some of the diseases that almost no one hears much about.

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