Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.

    Patients with Lesch-Nyhan Syndrome Have Biochemically Altered Skin, Urine, and Spinal Fluid
    StockSnap / Pixabay

    Patients with Lesch-Nyhan Syndrome Have Biochemically Altered Skin, Urine, and Spinal Fluid

    According to News Medical, a recent international study designed to understand Lesch-Nyhan syndrome and its potential treatments discovered something intriguing: biochemical changes in the skin, cerebrospinal fluid, and urine. Now,…

    Continue Reading Patients with Lesch-Nyhan Syndrome Have Biochemically Altered Skin, Urine, and Spinal Fluid
    Filmmaker with Muscular Dystrophy Wins Award for “Muscle Warriors” Documentary
    source: pixabay.com

    Filmmaker with Muscular Dystrophy Wins Award for “Muscle Warriors” Documentary

      According to Disability Horizons, an extremely talented filmmaker with muscular dystrophy recently won an Award of Recognition from The Best Shorts Film Competition. Stephanie Castelete-Tyrrell's film, entitled Muscle Warriors, documents…

    Continue Reading Filmmaker with Muscular Dystrophy Wins Award for “Muscle Warriors” Documentary
    Consumers with Allergies, EoE Worry When FDA Relaxes Food Labeling Guidelines
    https://pixabay.com/en/vegetables-carrot-food-healthy-1085063/

    Consumers with Allergies, EoE Worry When FDA Relaxes Food Labeling Guidelines

      Stacey Saiontz is many things: a worker, a wife, a mother. But right now, she is concerned. As an allergy parent, or a parent whose child has severe food…

    Continue Reading Consumers with Allergies, EoE Worry When FDA Relaxes Food Labeling Guidelines
    Southwest Eye Institute is the 2nd in the U.S. to Offer Bowman Layer Transplant for Keratoconus
    Free-Photos / Pixabay

    Southwest Eye Institute is the 2nd in the U.S. to Offer Bowman Layer Transplant for Keratoconus

    In a press release on PRWeb, the Southwest Eye Institute explains how Dr. Ahmed Soliman recently performed a Bowman layer transplant to treat keratoconus. This unique and minimally-invasive procedure, which…

    Continue Reading Southwest Eye Institute is the 2nd in the U.S. to Offer Bowman Layer Transplant for Keratoconus
    Can Endurance Training Prevent Friedreich’s Ataxia Onset? One Study Suggests Yes
    https://pixabay.com/en/exercise-jogging-man-person-1835032/

    Can Endurance Training Prevent Friedreich’s Ataxia Onset? One Study Suggests Yes

    Exercising has many physical and emotional benefits. It can manage blood sugar levels, improve your mood, assist with weight loss, or even strengthen your memory. Endurance training, specifically, benefits tissue…

    Continue Reading Can Endurance Training Prevent Friedreich’s Ataxia Onset? One Study Suggests Yes
    A New “Calculator” Analyzes 5-Year Risk for Arrhythmic Events in Long QT Syndrome
    JanBaby / Pixabay

    A New “Calculator” Analyzes 5-Year Risk for Arrhythmic Events in Long QT Syndrome

      Because of COVID-19, many health and medical-related conferences and events have been moved to virtual settings. But that doesn't mean that the learning has stopped, says Healio. During the Heart…

    Continue Reading A New “Calculator” Analyzes 5-Year Risk for Arrhythmic Events in Long QT Syndrome
    Positive Phase III Trial Results Show Efgartigimod as Effective for Myasthenia Gravis
    source: pixabay.com

    Positive Phase III Trial Results Show Efgartigimod as Effective for Myasthenia Gravis

      According to BioSpace, biotechnology company Argenx recently announced positive results from their Phase III ADAPT clinical trial. The company, who seeks to find breakthroughs in immunology and translate them…

    Continue Reading Positive Phase III Trial Results Show Efgartigimod as Effective for Myasthenia Gravis
    Michael J. Fox Foundation (MJFF) Offers Educational Parkinson’s Disease Webinar Series
    mohamed_hassan / Pixabay

    Michael J. Fox Foundation (MJFF) Offers Educational Parkinson’s Disease Webinar Series

    From 1985 to 1990, Michael J. Fox entertained the world with his portrayals of Marty McFly in the Back to the Future series. Although Marty is figuring out time travel as he…

    Continue Reading Michael J. Fox Foundation (MJFF) Offers Educational Parkinson’s Disease Webinar Series
    Novel Immunotherapy Treatment for AML and MDS Developed by AdventHealth
    source: pixabay.com

    Novel Immunotherapy Treatment for AML and MDS Developed by AdventHealth

    Orlando-based healthcare company AdventHealth developed a novel immunotherapy treatment designed to treat patients with AML and MDS whose conditions failed to respond to other treatments. In addition, the organization is…

    Continue Reading Novel Immunotherapy Treatment for AML and MDS Developed by AdventHealth
    Close Menu