Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.

    ICYMI: SRP-9003 Study Shows Positive Results for Treating LGMD Type 2E
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    ICYMI: SRP-9003 Study Shows Positive Results for Treating LGMD Type 2E

      In a recent press release, biotechnology company Sarepta Therapeutics announced positive findings from their clinical trial studying SRP-9003 as a treatment for limb-girdle muscular dystrophy (LGMD) type 2E. This…

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    How Rogue Astrocytes Cause Neurodegeneration
    GerryShaw / CC BY-SA (https://creativecommons.org/licenses/by-sa/3.0)

    How Rogue Astrocytes Cause Neurodegeneration

      You have a number of different cells throughout your body, all of which perform different functions or provide support. One extremely interesting type are astrocytes, star-shaped glial cells that…

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    AGA Recommendations: No Probiotics for Patients with Ulcerative Colitis and Other Digestive Disorders
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    AGA Recommendations: No Probiotics for Patients with Ulcerative Colitis and Other Digestive Disorders

      Over the last few years, I've heard the refrain that my health - oddly - starts in my gut. So whenever I got sick, someone would advise me to…

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    Protego-PD, for Necrotizing Enterocolitis, Receives Orphan Drug and Rare Pediatric Disease Designations
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    Protego-PD, for Necrotizing Enterocolitis, Receives Orphan Drug and Rare Pediatric Disease Designations

      Plakous Therapeutics released a press release to announce that Protego-PD™, their therapy for infants with necrotizing enterocolitis (NEC), received both the Orphan Drug and Rare Pediatric Disease designations from the FDA. There are…

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    No Improvement in Mortality Rate for Idiopathic Inflammatory Myositis
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    No Improvement in Mortality Rate for Idiopathic Inflammatory Myositis

    The medical field has seen many advancements over the past few decades. In particular, treatment for rheumatic diseases has greatly improved. However, states Healio, this is not reflected in patient…

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    Bevacizumab is Surprisingly Effective for Treating HHT
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    Bevacizumab is Surprisingly Effective for Treating HHT

    This year, thanks to COVID-19, the European Hematology Association (EHA) took their annual conference online - but that didn't prevent some intriguing new insights and ideas. In a press release,…

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    New Lifestyle Guidelines Will Improve QOL for Patients with Rheumatic and Musculoskeletal Diseases (RMDs)

    At this year's EULAR 2020 E-Congress, Dr. Suzanne Verstappen, MD, presented on how lifestyle changes could benefit patients with rheumatic and musculoskeletal diseases (RMDs). Her interest in the impact of…

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    Tailored EPOCH-R Treatment Benefits Adults with Burkitt Lymphoma, Says Study
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    Tailored EPOCH-R Treatment Benefits Adults with Burkitt Lymphoma, Says Study

    High dose-intensive chemotherapy regimens have been shown as effective for children with Burkitt lymphoma. However, the intensity often leads to discomfort, adverse reactions, and poor outcomes in adult patients, particularly…

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    UbiVac and Bristol Myers Squibb Team Up to Help Patients with Triple Negative Breast Cancer
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    UbiVac and Bristol Myers Squibb Team Up to Help Patients with Triple Negative Breast Cancer

    This week, UbiVac and Bristol Myers Squibb announced their clinical trial collaboration in a Biospace press release. The two companies, in a Phase 1b trial, look to study whether combining…

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    $950,000 Raised to Fund NeuroMotor Pen, A Diagnostic Tool for Neurological Disorders
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    $950,000 Raised to Fund NeuroMotor Pen, A Diagnostic Tool for Neurological Disorders

    Every day, the world becomes increasingly technological. With this comes advances in many realms, from healthcare to education. Recently, says Parkinson's News, medical technology company Manus Neurodynamica received £750,000 (approx. $950,000)…

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    New Project on Manganese Exposure Could Shape Parkinson’s Disease Research
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    New Project on Manganese Exposure Could Shape Parkinson’s Disease Research

    What better way to study Parkinson's disease than...to not study it? Well, according to Parkinson's News Today, researchers are hoping to learn more about the disorder by doing just that.…

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    CASI Pharmaceuticals Files CTA (IND) for Novel Multiple Myeloma Treatment

      According to a recent press release, biopharmaceutical company CASI Pharmaceuticals filed a Clinical Trial Application (CTA) (IND) in the United Kingdom. CASI Pharmaceuticals is hoping to test the safety…

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    This Woman is the First Ever Patient to Have Both aHUS and Cobalamin C Deficiency

    When the 19-year-old French woman first visited the hospital, she was extremely lethargic. She displayed neurological symptoms. Upon kidney failure, the patient was admitted into the ICU. But soon, doctors…

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    On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up
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    On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up

    Education, research, support, and patient advocacy: these are just four of the amazing things that rare disease or disorder foundations offer. Many foundations seek to offer programs and resources to…

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    From “Survivor” to Surviving Hodgkin Lymphoma: How Ethan Zohn’s Log Challenge Raises Cancer Awareness
    Photo by Thomas Peham on Unsplash

    From “Survivor” to Surviving Hodgkin Lymphoma: How Ethan Zohn’s Log Challenge Raises Cancer Awareness

      Growing up, my family and I faithfully watched Survivor each week. Although my parents stopped watching a few years back, settling in every Wednesday during the season is somewhat of a…

    Continue Reading From “Survivor” to Surviving Hodgkin Lymphoma: How Ethan Zohn’s Log Challenge Raises Cancer Awareness
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