It’s Not Too Late to Register for This Dystonia Event in Rhode Island!
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It’s Not Too Late to Register for This Dystonia Event in Rhode Island!

Spasmodic Torticollis/Dystonia or ST/Dystonia, is a non-profit organization whose aim is to support patients suffering from ST, also referred to as cervical dystonia. Dystonia involves involuntary muscle contractions that may…

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China’s Study on Deep Brain Stimulation Shows Long Term Promise for Tardive Dystonia
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China’s Study on Deep Brain Stimulation Shows Long Term Promise for Tardive Dystonia

Bilateral deep brain stimulation (DBS) has been known to help with symptoms of dystonia. But for a form of tardive dyskinesia known as tardive dystonia, DBS hasn't been studied as…

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Get Ready… The NYC Dystonia Patient Symposium is Coming Up Next Week!
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Get Ready… The NYC Dystonia Patient Symposium is Coming Up Next Week!

A few years ago, a friend of mine who is a violinist suddenly developed a movement disorder called focal dystonia. His neck began to have intermittent muscle contractions. His head would…

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Editor’s Choice: Overcoming Obstacles and Fulfilling Dreams with Rare Disease

Happy Friday Patient Worthians! PW Contributor Tom Seaman talks about what it's like to overcome the mental toll of your rare disease diagnosis. Another PW Contributor suffering from TN, dysautonomia and…

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Editor’s Choice: New MS Drug Approved, Narcolepsy Realities and Building a CF Team

Welcome back Patient Worthians! This week we have some exciting news for the MS community. Additionally, we have some great tips on how to build your CF dream team. Also,…

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Artist Turns His Experience with Facial Dystonia Into Stunning Works of Art
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Artist Turns His Experience with Facial Dystonia Into Stunning Works of Art

The artist's medium? Wood, mirrors, and various other materials. His art? Jarring and beautiful headpieces—Tiago Valente's way of understanding his own experience with dystonia. Tiago called it facial dystonia, and from…

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