This Handball Player Began Walking Oddly. It Took Nearly Two Years For Doctors To Discover What Was Wrong.
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This Handball Player Began Walking Oddly. It Took Nearly Two Years For Doctors To Discover What Was Wrong.

According to a story from the Washington Post, avid handball player Laura Hsiung first began experiences symptoms of a mysterious illness in the middle of a game. Suddenly, without realizing…

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It’s Not Too Late to Register for This Dystonia Event in Rhode Island!
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It’s Not Too Late to Register for This Dystonia Event in Rhode Island!

Spasmodic Torticollis/Dystonia or ST/Dystonia, is a non-profit organization whose aim is to support patients suffering from ST, also referred to as cervical dystonia. Dystonia involves involuntary muscle contractions that may…

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China’s Study on Deep Brain Stimulation Shows Long Term Promise for Tardive Dystonia
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China’s Study on Deep Brain Stimulation Shows Long Term Promise for Tardive Dystonia

Bilateral deep brain stimulation (DBS) has been known to help with symptoms of dystonia. But for a form of tardive dyskinesia known as tardive dystonia, DBS hasn't been studied as…

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Get Ready… The NYC Dystonia Patient Symposium is Coming Up Next Week!
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Get Ready… The NYC Dystonia Patient Symposium is Coming Up Next Week!

A few years ago, a friend of mine who is a violinist suddenly developed a movement disorder called focal dystonia. His neck began to have intermittent muscle contractions. His head would…

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Editor’s Choice: Overcoming Obstacles and Fulfilling Dreams with Rare Disease

Happy Friday Patient Worthians! PW Contributor Tom Seaman talks about what it's like to overcome the mental toll of your rare disease diagnosis. Another PW Contributor suffering from TN, dysautonomia and…

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