All Eyes are Open for This New Narcolepsy Drug
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All Eyes are Open for This New Narcolepsy Drug

At a recent conference, Jazz Pharmaceuticals presented positive efficacy results from the JZP-110 (TONES) studies in adult patients with sleep impairment conditions and the excessive sleepiness associated with these diseases.…

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Narcolepsy In the News

Want some more news, events and announcements on Narcolepsy? We got 'em! [one_half]     [/one_half] [one_half_last] A Narcolepsy Miracle Drug? First Patient In Phase 3 Study Evaluating Treatment for…

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Narcolepsy: A Teenager’s Story
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Narcolepsy: A Teenager’s Story

Imagine watching movies with friends, not knowing that you have narcolepsy and struggling to stay awake. Your eyes keep rolling and you keep fighting to stay awake. Yet you cannot.…

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This Woman with Narcolepsy Made a Decision That’s Freaking Me Out
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This Woman with Narcolepsy Made a Decision That’s Freaking Me Out

Oh here’s an article that really grabbed my FREAKING attention about a 20-something Chinese woman who is living with narcolepsy. She has chosen not to take medications for her narcolepsy…

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Editor’s Choice: New MS Drug Approved, Narcolepsy Realities and Building a CF Team

Welcome back Patient Worthians! This week we have some exciting news for the MS community. Additionally, we have some great tips on how to build your CF dream team. Also,…

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Editor’s Choice: Consequences of Unintentional Exploitation in Rare Disease

Happy Spring Patient Worthians! This week we have pieces from two rare women, one battling the rare disease pemphigus vulgaris, part of the pemphigus and pemphigoid family. The other is…

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First-of-its-Kind Scholarship Empowers Young People with Narcolepsy
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First-of-its-Kind Scholarship Empowers Young People with Narcolepsy

Jack played high school volleyball and served with the junior fire department. He hopes to become an engineer. Donovan played saxophone, competed as a wrestler, performed theater, and reached a…

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Editor’s Choice: Suddenly Sleepy and Beautifully Broken

Welcome back to Editor's Choice! This week we have an interesting take on Parkinson's treatment. We also have an empowering article from one of PW's rare disease contributors. We are all feeling the…

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Support Groups: We Love ‘Em! Do You?
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Support Groups: We Love ‘Em! Do You?

I’ve found that people feel very differently about support groups for their diseases, including narcolepsy. Some seek them out. Others avoid them at all costs. Some might not like the…

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