Researchers from Duke Health are hoping to discover new treatments for Lyme disease since the only way to currently manage the disease is by taking consistent antibiotics, which can be…
According to an article from GlobeNewswire, new clinical evidence supports the use of gelpaglutide as a once-weekly treatment for short bowel syndrome. Zealand Pharma completed a Phase I clinical trial…
15-year-old Jonathan Gutierrez might just be the youngest superhero to date. Recently, a video of him went viral showing how he's sacrificed a lot of his youth to take care…
A new fundraising challenge is sweeping all social media platforms once again for amyotrophic lateral sclerosis (ALS), first reported Mom.me. Back in 2014, the ice bucket challenge was a wild success, being…
The Australian government has announced that almost that new treatments worth $300 million are being added to the Pharmaceutical Benefits Scheme. This program provides subsidized medical treatments to citizens of…
According to an article from the Chicago Tribune, many medical specialists are coming to the realization that the eligibility criteria for clinical trials should be reassessed. The problem is that…
Minoryx Therapeutics is on their way to making strides for patients with adrenomyeloneuropathy, also known as AMN, reports Labiotech. They just started their phase II initiative to test patients for…
A recent study conducted by researchers from National University of Singapore Medicine laboratory shows that eating vegetables, specifically broccoli, might prevent and even kill cancer cells that develop into colorectal…
Happy Friday Patient Worthians! Believe it or not, we've almost made it through the first month of 2018! This week, we have a story of a young girl with Sanfillipo…
For many - leprosy is nothing but an antiquated disease from biblical times with no present-day relevance. But in fact, nearly 150 to 250 people in the United States and 250,000 around the…
Many cancer and blood specialists will not have encountered systemic mastocytosis. A new drug targets the underlying defect of the disease and will help put doctors on the lookout. Keep…
It's a good time to check in on your eye health because January is Glaucoma Awareness Month! More than 3 million people in the United States have glaucoma - and…
Living with the rare condition subglottic stenosis is never easy, especially when you're trying to keep up with your little boy. Caledon Enterprise reported that Emily Rogers does just that. She…
David Fogel's aunt was diagnosed with an advanced stage of stomach cancer when she was just fifty-six years old. Constantly dealing with severe pain and the side effects of treatment,…
Out-of-pocket expenses for rare disease are astronomical, and the Ministry of Health (MOH), is taking time to find a more positive way to help benefit children and their families burdened…
On the pages of the Abby Grace Foundation website, you will find over twenty beautiful pictures of different children. Most of the children are smiling. One looks into the camera…
25-year-old Zoey Wright is a real force of nature! Having been diagnosed with the rare disease ulcerative colitis she found herself dependent upon a colostomy bag, yet that didn't stop…
According to an article from seattletimes.com, a homeless man's fight with cancer may actually improve his dire circumstances. Alan Brooks, a homeless man who was down on his luck, had…
According to a story from IBD News Today, the Food and Drug Administration (FDA) has just issued approval for the pharmaceutical company Immunic Therapeutics to move forward with Phase II…
January is National Birth Defects Prevention Month! A birth defect is defined as a problem that happens while a baby is developing in the mother's body. Most birth defects happen during the…
The Alabama Rare Disease community has come together to host a special week in honor of the upcoming date February 28th, 2018, which is now the official International Rare Disease…
According to a story from PR Newswire, the pharmaceutical company Biohaven announced that they have received clearance from the Food and Drug Administration (FDA) to begin work on its clinical trials…
According to a story from ibtimes.co.uk, Sue Cox, a 65 year old Welsh woman from Cwmbran, has sought alternative methods for dealing with the worst symptoms of her multiple sclerosis.…
Reported by Strait Times, it was announced by Ministry of Health last week that there may be a potential fund developed to help children who suffer not only from a…
Tomorrow is Moebius Syndrome Awareness Day! Moebius Syndrome Awareness is celebrated globally each year - with the goal of raising awareness about this rare condition and to educate the many…
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