A Strawfie is a Selfie While Breathing Through a Straw for Cystic Fibrosis Awareness

What is a strawfie? A selfie (picture of yourself) while breathing through a straw. You've met Cassie Hawthorne in Patient Worthy's write up Model with Cystic Fibrosis Bringing Awareness to Disease earlier…

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Young Woman with Cystic Fibrosis Making the Most of Her 2nd Chance at Life
George's strawfie. Photo Courtesy of Shaun Williams

Young Woman with Cystic Fibrosis Making the Most of Her 2nd Chance at Life

Little Miss Positive, Georgina Compton, is making the most of her second chance at life. Last year Georgina (George) Compton faced the very real prospect of dying at the age…

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5 Bloody Amazing Things About the Bleeding Disorder Red Tie Challenge
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5 Bloody Amazing Things About the Bleeding Disorder Red Tie Challenge

Ever heard that blood is thicker than water? Not only am I sure the National Hemophilia Foundation (NHF) has heard it—they’re essentially creating a movement around it. And it’s pretty…

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