The Ripple Effect of My Colorectal Cancer Journey: How One Small Moment Can Change Your Life
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The Ripple Effect of My Colorectal Cancer Journey: How One Small Moment Can Change Your Life

Written by Yla Flores Have you ever experienced a seemingly small moment that ended up changing your life forever? Whether it’s turning left instead of right, going out one night…

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Research Breakthrough: Scientists May Have Discovered How Tumor Cells Outwit the Immune System
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Research Breakthrough: Scientists May Have Discovered How Tumor Cells Outwit the Immune System

Editor's Note: Chronic conditions and rare diseases don't discriminate, Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have…

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Carisma Therapeutics is Developing CT-0508 to Target HER2 Positive Cancers
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Carisma Therapeutics is Developing CT-0508 to Target HER2 Positive Cancers

Carisma Therapeutics, the manufacturer of CT-0508, issued a press release stating that researchers are conducting a combination study using CAR-M cell therapy plus Keytruda (pembrolizumab) in the treatment of overexpressing…

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ASCO Member Testifies Before Senate Committee on Current Nationwide Shortage of Certain Cancer Drugs
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ASCO Member Testifies Before Senate Committee on Current Nationwide Shortage of Certain Cancer Drugs

According to a recent American Society of Clinical Oncology (ASCO) press release, Dr. Jason Westin provided testimony regarding a nationwide shortage of cancer drugs, numbering more than 15 on the…

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Rare Community Profiles: The Enemy Inside Me: Brandi’s Journey of Hope and Survivorship After Ewing Sarcoma
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Rare Community Profiles: The Enemy Inside Me: Brandi’s Journey of Hope and Survivorship After Ewing Sarcoma

  Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

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A Colon Cancer Diagnosis During Pregnancy Led This Mother to Learn She Had Li-Fraumeni Syndrome
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A Colon Cancer Diagnosis During Pregnancy Led This Mother to Learn She Had Li-Fraumeni Syndrome

For the first two months of her pregnancy, Kristine Koser felt pretty good. Koser and her husband, Andrew, couldn't wait to welcome their daughter Aubrey into the world. Everything seemed…

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White Sox Pitcher Liam Hendriks Returns to Field After Conquering Non-Hodgkin’s Lymphoma (NHL)
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White Sox Pitcher Liam Hendriks Returns to Field After Conquering Non-Hodgkin’s Lymphoma (NHL)

In December 2022, Liam Hendriks—a pitcher for the Chicago White Sox—was diagnosed with non-Hodgkin’s lymphoma (NHL); he shared this news with the world in January 2023, which Patient Worthy reported…

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Rare Classroom: Anal Cancer
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Rare Classroom: Anal Cancer

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

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New Guidance from the FDA Intends to Improve Cancer Clinical Trials for Accelerated Approval
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New Guidance from the FDA Intends to Improve Cancer Clinical Trials for Accelerated Approval

According to a press release from the US Food and Drug Administration (FDA), on March 24, 2023, the agency issued a new draft guidance titled Clinical Trial Considerations to Support Accelerated…

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Researchers have Discovered a Method for Targeting a Previously “Undruggable” Protein in Cancer
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Researchers have Discovered a Method for Targeting a Previously “Undruggable” Protein in Cancer

  Researchers have been grappling for years with the STAT5 protein as a tool to fight cancer. STAT5 is critical because it is partly responsible for the development and progression…

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Study of the Week: BPTA Syndrome Research Uncovers Hereditary Disease Mechanism that Could help Prevent Cancer
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Study of the Week: BPTA Syndrome Research Uncovers Hereditary Disease Mechanism that Could help Prevent Cancer

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

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The Extremely Rare Disease BPTA Syndrome may Lead Scientists to Prevent the Development of Cancer
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The Extremely Rare Disease BPTA Syndrome may Lead Scientists to Prevent the Development of Cancer

  The Schleswig-Holstein University Hospital and the Max Planck Institute in Germany have investigated a hereditary condition that is extremely rare called brachyphalangy, polydactyly, and tibial aplasia/hypoplasia (BPTA) syndrome. Symptoms…

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