This Business Owner and Baker’s Daughters Will Both Benefit from Newly Covered Cystic Fibrosis Drugs
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This Business Owner and Baker’s Daughters Will Both Benefit from Newly Covered Cystic Fibrosis Drugs

According to a story from dailypost.co.uk, Richard Mason, the millionaire founder of moneysupermarket.com, and and baker Alison Faire's daughters Annabelle (aged 4 years) and Imogen (aged 7 years) don't have…

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A Woman With Cystic Fibrosis and Another With Heart Failure Got Organ Transplants From the Same Donor
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A Woman With Cystic Fibrosis and Another With Heart Failure Got Organ Transplants From the Same Donor

According to a story from theage.com.au, a remarkable turn of fate would bring together two women who would have otherwise never known each other---and save both of their lives in…

Continue Reading A Woman With Cystic Fibrosis and Another With Heart Failure Got Organ Transplants From the Same Donor
Despite a Newly Approved Treatment, The Cystic Fibrosis Foundation Isn’t Slowing Down its Efforts
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Despite a Newly Approved Treatment, The Cystic Fibrosis Foundation Isn’t Slowing Down its Efforts

According to a story from statnews.com, the approval of the new cystic fibrosis drug Trikafta has caused quite a buzz in this rare disease community. While this new drug offers…

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First Patient Dosed in Clinical Trial of Cystic Fibrosis with Severe Exocrine Pancreatic Insufficiency
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First Patient Dosed in Clinical Trial of Cystic Fibrosis with Severe Exocrine Pancreatic Insufficiency

According to a story from BioSpace, the biopharmaceutical company AzuRx BioPharma Inc. recently announced that the first patient has been treated in the company's phase 2 clinical trial. This trial…

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Man with Cystic Fibrosis Goes From 24/7 Oxygen Tank to an Avid Biker 24 Years After his Lung Transplant
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Man with Cystic Fibrosis Goes From 24/7 Oxygen Tank to an Avid Biker 24 Years After his Lung Transplant

  When Frankie Avila first got his lung transplant, he was told that, like most organs that are transplanted, his lungs only have a certain amount of time before they…

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An Experimental Cystic Fibrosis Treatment Could Make This Patient’s Greatest Wish Come True

According to a story from abc.net.au, Darren Bullock is getting pretty long in the tooth---at least for a cystic fibrosis patient. He is 44 years old, and his lungs currently…

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