Cystic Life – Patient Worthy

¿Qué harías con 180 minutos?

Post author:Patient Worthy Contributor
Post published:December 27, 2016
Post category:Cystic Fibrosis

¿Qué se hace con 180 minutos? Piense en esto por sólo 1 minuto ... Ahora, dedique 1 minuto más viendo el vídeo a continuación. Para los cerca de 30.000 personas…

Conoce a Ronnie: ejercer su derecho heroico de inspirar a la comunidad de fibrosis quística

Post author:Patient Worthy Contributor
Post published:December 10, 2016
Post category:Cystic Fibrosis Rare Disease

PatientWorthy se ha unido a CysticLife.org para poner de relieve algunos de los miembros de su comunidad increíble! CysticLife.org surgió de un blog iniciado por CF paciente, Ronnie Sharpe, para…

https://pixabay.com/en/silhouette-girl-dance-party-disco-1594698/

Vas a hacer tu danza feliz cuando leas acerca de este niño!

Post author:Patient Worthy Contributor
Post published:December 8, 2016
Post category:Cystic Fibrosis Rare Disease

Alguna vez has tenido uno de esos días en los que no se sentía muy entusiasmado acerca de su vida? Tú sabes de qué estoy hablando. Los blues de ho-hum.…

How Taking Selfies Turned Briauna into an Entrepreneur

Post author:Patient Worthy Contributor
Post published:June 6, 2016
Post category:Cystic Fibrosis

Brie Peters is 25 years old and has been living with Cystic Fibrosis since she was 10 months old. This is Part 2 of her interview. Exercising had become an…

Woman with Cystic Fibrosis is Breathing Fitness into Life

Post author:Patient Worthy Contributor
Post published:June 3, 2016
Post category:Cystic Fibrosis

Bearing both common missense mutations ΔF508 and G551D, Briauna was diagnosed with Cystic Fibrosis (CF) as a 10 month old baby. As a child living and growing up with CF,…

“La Vecina” tiene un destino inspirador con la fibrosis quística y el Ejercicio

Post author:Patient Worthy Contributor
Post published:April 13, 2016
Post category:Cystic Fibrosis Rare Disease

Si alguna vez hubo una "girl next door", Ashley Coleman seria la manifestacion de esta idea, una mujer joven y bella, de ojos brillantes, rubia y muy activa! Ella tiene…

Conozca a Ronnie: ejerciendo su derecho heroico para inspirar a la Comunidad con Fibrosis Quística

Post author:Patient Worthy Contributor
Post published:March 24, 2016
Post category:Cystic Fibrosis Rare Disease

PatientWorthy está asociando con CysticLife.org para poner de relieve algunos de los miembros en su increíble comunidad! CysticLife.org surgió de un blog iniciado por paciente con FQ, Ronnie Sharpe, para…

Bailaras de la felicidad cuando leas acerca de este muchachito!

Post author:Patient Worthy Contributor
Post published:March 22, 2016
Post category:Cystic Fibrosis Rare Disease

Alguna vez has tenido uno de esos días en los que simplemente no se sentía muy entusiasmado acerca de su vida? Tú sabes de qué estoy hablando. Los blues de…

“Girl Next Door’s” Inspiring Destiny With Cystic Fibrosis and Exercise

Post author:Alisha Stone
Post published:January 1, 2016
Post category:Cystic Fibrosis Rare Disease

If ever there was a “girl next door,” it’s Ashley Coleman, a beautiful, bright-eyed-blonde and very active young woman! She’s got the smile of a Homecoming Queen! Even though Ashley…

Meet Matt: Inspiring People to Dream Big, On and Off the Gridiron

Post author:Ronald Ledsen
Post published:December 23, 2015
Post category:Cystic Fibrosis Rare Disease

For many cystic fibrosis (CF) patients who grew up in years past, one of the greatest hurdles and frustrations was being told they couldn’t do something, especially sports or physical activities. Sometimes…

What would you do with 180 minutes?

Post author:Patient Worthy Contributor
Post published:December 11, 2015
Post category:Cystic Fibrosis

What do you do with 180 minutes? Think about it for just 1 minute... Now, spend 1 more minute watching the video below. For the some 30,000 people living with CF, days…

You’ll Do Your Happy Dance When You Read About This Little Boy!

Post author:Alisha Stone
Post published:December 10, 2015
Post category:Cystic Fibrosis Rare Disease

Ever have one of those days when you just weren’t feeling very enthused about your life? You know what I’m talking about. Those ho-hum blues. Those days when you don’t…

Meet Ronnie: Exercising His Heroic Right to Inspire the Cystic Fibrosis Community

Post author:Ronald Ledsen
Post published:December 10, 2015
Post category:Cystic Fibrosis Rare Disease

PatientWorthy is teaming up with CysticLife.org to spotlight some of the members in their awesome community! CysticLife.org sprang from a blog started by CF patient, Ronnie Sharpe, to track his life…

Cystic fibrosis survivor sings her journey.

Meet Olivia: How to Set a Life With CF to Song

Post author:Ronald Ledsen
Post published:December 9, 2015
Post category:Cystic Fibrosis Rare Disease

Though she’s lived with cystic fibrosis since she was 17 months old, Olivia never thought of it as something that made her different. Growing up, her daily medication routine was…

¿Qué harías con 180 minutos?

Conoce a Ronnie: ejercer su derecho heroico de inspirar a la comunidad de fibrosis quística

Vas a hacer tu danza feliz cuando leas acerca de este niño!

How Taking Selfies Turned Briauna into an Entrepreneur

Woman with Cystic Fibrosis is Breathing Fitness into Life

“La Vecina” tiene un destino inspirador con la fibrosis quística y el Ejercicio

Conozca a Ronnie: ejerciendo su derecho heroico para inspirar a la Comunidad con Fibrosis Quística

Bailaras de la felicidad cuando leas acerca de este muchachito!

“Girl Next Door’s” Inspiring Destiny With Cystic Fibrosis and Exercise

Meet Matt: Inspiring People to Dream Big, On and Off the Gridiron

What would you do with 180 minutes?

You’ll Do Your Happy Dance When You Read About This Little Boy!

Meet Ronnie: Exercising His Heroic Right to Inspire the Cystic Fibrosis Community

Meet Olivia: How to Set a Life With CF to Song

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