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dystonia awareness month

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Scientists Find a New Genetic Cause for Dystonia… and a Possible Treatment
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Scientists Find a New Genetic Cause for Dystonia… and a Possible Treatment

  • Post author:Ronald Ledsen
  • Post published:September 1, 2017
  • Post category:Dystonia/Rare Disease

A team of researchers at the University College of London (UCL) looking at the genome of childhood-onset dystonia patients has stumbled on a startling discovery: 28 of the patients had…

Continue Reading Scientists Find a New Genetic Cause for Dystonia… and a Possible Treatment
Descubre por qué este mensaje sobre la distonia es tan importante

Descubre por qué este mensaje sobre la distonia es tan importante

  • Post author:Patient Worthy Contributor
  • Post published:October 17, 2016
  • Post category:Dystonia/Rare Disease

  Conozca a Brittany! Brittany estaba desanimado después de ir a un restaurante y tener la camarera ignoran por completo de ella cuando la distonía hace que le sea difícil…

Continue Reading Descubre por qué este mensaje sobre la distonia es tan importante
El corazón de esta mamá hará que usted quiera actuar
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El corazón de esta mamá hará que usted quiera actuar

  • Post author:Patient Worthy Contributor
  • Post published:October 4, 2016
  • Post category:Dystonia/Rare Disease

  "Feliz Mes de la conciencia para la distonía!" Tal vez "feliz" no sea la palabra adecuada ... Porque, mientras que separa la conciencia es siempre algo que celebrar, la distonía…

Continue Reading El corazón de esta mamá hará que usted quiera actuar
Wondering How To Make Your Vitamins Rock Dystonia? Read This!

Wondering How To Make Your Vitamins Rock Dystonia? Read This!

  • Post author:Sabina Kennedy
  • Post published:September 30, 2016
  • Post category:Dystonia/Rare Disease

Wondering how to make your vitamins rock dystonia? (Not as badass as Chuck Norris, of course.) If yes to the vitamins, then read on! There are multiple forms of dystonia, and…

Continue Reading Wondering How To Make Your Vitamins Rock Dystonia? Read This!
Do You Know What a Yip Is? You Should.
[Source: pixabay.com]

Do You Know What a Yip Is? You Should.

  • Post author:James Ernest Cassady
  • Post published:September 30, 2016
  • Post category:Dystonia

Kathleen Bissell (wonder if she's related to the vacuum people) wrote about Ernie Els's putting problems during The Masters over on www.progolfnow.com. Why do we care at PatientWorthy? Because Bissell…

Continue Reading Do You Know What a Yip Is? You Should.
How to Be Brave and Laugh While Living With Dystonia
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How to Be Brave and Laugh While Living With Dystonia

  • Post author:Sabina Kennedy
  • Post published:September 29, 2016
  • Post category:Dystonia

Would you let a diagnosis of dystonia turn you inside out? Could it make you forget how to see the good in life? It may be time. Time to cue…

Continue Reading How to Be Brave and Laugh While Living With Dystonia
More People Need to Be Like Jake Silverman
[Source: pixabay.com]

More People Need to Be Like Jake Silverman

  • Post author:James Ernest Cassady
  • Post published:September 29, 2016
  • Post category:Dystonia

You've gotta love it when someone takes a bad situation and makes the very best out of it. Jake Silverman and his family have done just that. At 10 years…

Continue Reading More People Need to Be Like Jake Silverman
The Smackdown on Dystonia and Mental Health: How to Help
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The Smackdown on Dystonia and Mental Health: How to Help

  • Post author:Sabina Kennedy
  • Post published:September 28, 2016
  • Post category:Dystonia/Rare Disease

Mental health is a sensitive topic for many people with dystonia since a lot of cases are initially mistaken for a psychological condition. In the vast majority of cases, dystonia is a neurological…

Continue Reading The Smackdown on Dystonia and Mental Health: How to Help
For People on the Verge of Supporting the Dystonia Cause
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For People on the Verge of Supporting the Dystonia Cause

  • Post author:Sabina Kennedy
  • Post published:September 7, 2016
  • Post category:Dystonia/Rare Disease/Timely

Superman, where are you now? Look no further than Warren, Michigan. Not many people may know or have heard about dystonia. It is a neurological movement disorder that complicates mobility…

Continue Reading For People on the Verge of Supporting the Dystonia Cause

Descubre por qué este mensaje viral es tan importante

  • Post author:Patient Worthy Contributor
  • Post published:March 10, 2016
  • Post category:Dystonia/Rare Disease

Conozca a Brittany Brittany estaba desanimada después de ir a un restaurante y tener que aguantar que la camarera la ignoraba por completo cuando los sintomas de su distonía le hician difícil enunciar. Después de…

Continue Reading Descubre por qué este mensaje viral es tan importante
This Mom’s Heart Will Make You Want to Act
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This Mom’s Heart Will Make You Want to Act

  • Post author:Patient Worthy Contributor
  • Post published:September 25, 2015
  • Post category:Dystonia/Rare Disease

It's September! You know what that means? Happy "Dystonia Awareness Month!" Maybe "Happy" is the wrong word... Because, while spreading awareness is always something to cheer about, dystonia is not. Here…

Continue Reading This Mom’s Heart Will Make You Want to Act

Learn why this Viral Message is so Important

  • Post author:Rebekah
  • Post published:September 22, 2015
  • Post category:Dystonia/Rare Disease

Meet Brittany! Brittany was disheartened after going to a restaurant and having the waitress completely ignore her when Dystonia made it difficult for her to enunciate. After first relocating to…

Continue Reading Learn why this Viral Message is so Important
This is Why People Are Shakin’ It for Dystonia Awareness Month

This is Why People Are Shakin’ It for Dystonia Awareness Month

  • Post author:Patient Worthy Contributor
  • Post published:September 16, 2015
  • Post category:Dystonia/Rare Disease

Show us your moves, dystonia patients, show us your moves. At least, that’s what Pat Wyatt’s doing, according to a recent article published in the Shelby County Reporter. Wyatt has…

Continue Reading This is Why People Are Shakin’ It for Dystonia Awareness Month
Meme Monday: 3 Images to Help You Raise Dystonia Awareness

Meme Monday: 3 Images to Help You Raise Dystonia Awareness

  • Post author:Patient Worthy Contributor
  • Post published:September 14, 2015
  • Post category:Rare Disease

This Meme Monday we want to support our more than Worthy Dystonia patients and caregivers as we all come together and raise dystonia awareness. As we try to make September…

Continue Reading Meme Monday: 3 Images to Help You Raise Dystonia Awareness

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