AACPDM 72nd Annual Meeting "Transformative Journeys" This event is aimed at all researchers, medical professionals, and caregivers focused on cerebral palsy. The conference will present new information on cerebral palsy…
The clinical research process is a thorough and time consuming method in which new drugs, therapies, and medical devices are rigorously tested before being made available to the public. Through…
At this conference, narcolepsy patients and their families will have the opportunity to learn about the latest in narcolepsy research, diagnostics, and treatment. In addition patient families will have the…
Research Symposium and Family Conference This event will feature a program of scientific research presentations as well as workshops for families of those affected by Prader-Willi syndrome. Registration Family Conference…
This invitation only event will feature global familial hypercholesterolemia experts, industry leaders, caregivers, and patients. The conference will feature speaker and panelists who will address a diverse array of subjects…
The 2018 National NET Patient Conference This event will be an opportunity for patients suffering from a variety of diseases, such as carcinoid syndrome, to converge and learn more about…
The International Symposium on the Ehlers-Danlos Syndromes “Interaction and signaling: recurrent themes in the molecular mechanisms of EDS.” This event will allow scientists and clinicians to come together to discuss…
The Histio Ty-Fighters 5K 2018 This exciting Star Wars themed 5K event is a family friendly opportunity to help support the activities of the Histiocytosis Association. Help support the Histiocytosis…
Living With Aplastic Anemia, MDS, or PNH Join us and connect with patients, families, and caregivers who are living with aplastic anemia, PNH, MDS, and AML. Meet and hear top medical experts discuss…
The Inaugural 2018 Paula's Purple Passion Walk The family fun walk is a fundraiser that will benefit the Histiocytosis Association. The event will also honor the memory of Paula Marie…
"Beating Castleman's, Together" This unique event allows for patients and families affected by Castleman disease to converge and learn more about the latest research and treatment information related to this…
The 9th International Scientific Workshop "Many pathways. One goal." This event will promote collaboration between medical experts, researchers, and caregivers to work together to find a cure for progeria. The…
The Amyloidosis Foundation is a non-profit organization that is committed to working and advocating for the amyloidosis patient community. The foundation is dedicated to supporting amyloidosis patients and their families…
The 2nd Annual World Congress Lessons Learned From Rare Disease and Personalized Medicine Approaches This conference will explore strategies for drug discovery, innovative therapeutic approaches, and personalized medicine, with an…
The 16th World Congress of the International Society for Diseases of the Esophagus This event will bring together researchers and medical experts across the world that specialize in diseases of…
The 16th International Conference on Shaken Baby Syndrome/Abusive Head Trauma At this event experts will discuss the latest news and research related to shaken baby syndrome, as well as prevention…
The 2018 MDF Annual Conference This event will be open to myotonic dystrophy patients, their families, researchers, health professionals, and caregivers. Attendees will have the opportunity to learn the latest…
The 20th Annual John Goldman Conference on Chronic Myeloid Leukemia: Biology and Therapy This scientific, educational convergence will give all attendees the knowledge they need to understand the origins and…
Patients and families registration for the Seattle Histio Patient & Family Regional Meeting is free! Check out this informative meeting that includes a networking lunch!
This patient conference will be a chance for patient families affected by Coffin-Siris syndrome to come together to learn more about the disorder. In addition attendees will be able…
This educational conference is tailored for patients and their families. Participants will have the opportunity to learn the latest information about treatment and Fabry disease research. The event will…
The 2018 Annual Patient Conference This conference will be an opportunity for patients, their families, and caregivers to learn the latest in research for various forms of myositis, such…
On August 4th, the Ehlers-Danlos Society led the Zebra Strong Rally, which concluded the third day of the Ehlers-Danlos Syndrome Learning Conference in Baltimore, Maryland. Advocating for Ehlers-Danlos Syndrome The…
Recently, the Ehlers-Danlos Society held its second annual Zebra Ball at the EDS World Learning Conference in Baltimore, Maryland. The event fundraised for further support and awareness of Ehlers-Danlos syndrome…
This conference represents a unique opportunity for people affected by paralysis disorders such as primary periodic paralysis and hyperkalemic periodic paralysis to converge and learn more about their condition. Participants…
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