Back in February, we covered the $1,000,000 IPF Catalyst Challenge. Announced in April, innovators from around the world submitted meaningful solutions to improve the quality of life of those living with…
Reviva Pharmaceuticals Inc. (Reviva) announced on April 10th that it received Orphan Drug Designation from the United States Food and Drug Administration (FDA) for one of its experimental candidates. The…
According to a story from The Irish Times, Noreen O'Carroll can vividly remember when she first received the news that she had been diagnosed with idiopathic pulmonary fibrosis. It was…
According to a story from The Irish Times, a new campaign is encouraging people with the rare lung condition idiopathic pulmonary fibrosis to keep exercising. The campaign is centered around…
According to a story from LiveScience, nine dentists and dental workers in the state of Virginia have been diagnosed with idiopathic pulmonary fibrosis, a rare and dangerous lung disease. All…
According to a story from seas.yale.edu, a recent study conducted under the supervision of Yale University is providing new clues for the underlying cause of idiopathic pulmonary fibrosis. The researchwea…
According to a story from the Vancouver Sun, five rare disease drugs just received coverage in British Columbia. The funding comes from savings accumulated thanks to a recent agreement that…
According to an article from news-medical.net, a group of researchers from the Telomere and Telomerase Group at the Spanish National Cancer Research Centre have been able to pin down the…
Katie Price, a former British model, has accepted the challenge of running the next London marathon with intent to fundraise for IPF, idiopathic pulmonary fibrosis, a disease her mother was…
A wealthy do-gooder is championing Idiopathic Pulmonary Fibrosis (IPF). No, it's not Tony Stark (a.k.a. Ironman). But there is a mega-force super power uniting global innovators, researchers, and healthcare entrepreneurs…
Who said helping cure and treat rare diseases couldn't be fun?! Last week, Three Lake Partners - a venture firm that invests in healthcare and quality-of-life solutions for patients dealing…
For the estimated 100,000 to 200,000 people in the US diagnosed with idiopathic pulmonary fibrosis (IPF), finding a community is important. IPF is a rare lung disease, which you can…
New research is helping experts understand the underlying causes of idiopathic pulmonary fibrosis on the molecular scale. When solving any problem, disease included, it is best to start by understanding…
Good news for Prometic Life Science new drug application! The pharmaceutical company has been searching for a cure for idiopathic pulmonary fibrosis (IPF), a rare lung disease which you can…
Have you ever googled the word "precision"? Words linked to turbine engines, long-lasting tires and even industrial cameras pop up. But, what I didn’t see was anything related to precision…
Health scientists at the University of Leicester and University of Nottingham have heralded the discovery of a gene associated with lung fibrosis, such as idiopathic pulmonary fibrosis (IPF), as "a…
In a study at the University of North Carolina (Chapel Hill), researchers found that there may be a much more effective new way to isolate lung stem cells in order…
September is Global Pulmonary Fibrosis Month. If you or someone you know and love has a form of this devastating disease, you know how important it is to spread awareness…
A North Carolina-based research group has just developed research that indicates a potential stem cell treatment for lung fibrosis conditions such as cystic fibrosis (CF) and idiopathic pulmonary fibrosis (IPF).…
Most people take breathing for granted — until the ability to breathe is impaired. People with idiopathic pulmonary fibrosis (IPF) know this all too well. Without the ability to readily…
Recently, the U.S. FDA has deemed a particular idiopathic pulmonary fibrosis (IPF) drug "orphan drug status" worthy. Last week, on July 25, 2017, it was reported that the FDA granted…
An immensely frustrating aspect of living with a health condition, and particularly a rare one such as idiopathic pulmonary fibrosis (IPF), is that other people might know nothing about the very disease…
Researchers have just found some really exciting information that will be crucial in the development of idiopathic pulmonary fibrosis (IPF) treatments from here on out. Scientists at Northwestern Medicine have…
Idiopathic Pulmonary Fibrosis (IPF) most commonly affects aging adults, but for columnist Charlene Marshall, the disease struck in her late 20s. A diagnosis in and of itself is shocking, but…
“Idiopathic Pulmonary Fibrosis: Partnering with Your Doctor,” is an interactive program for people diagnosed with idiopathic pulmonary fibrosis (IPF) and their caregivers. And you know what's even more awesome about…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
