Wendy sits at the corner of a polished conference table. She’s timid by nature—a little mousy. Her voice squeaks out responses as she participates in the discussion. The conference she’s attending…
Movies, television shows, and books can create a vision of a world with endless possibilities. The future can be portrayed in ways that we would find impossible in the present…
When your body has to work extra hard to breathe because of lung issues such as idiopathic pulmonary fibrosis (IPF), help it out by “eating healthy.” Digesting big, heavy meals…
2016 has been a very bizarre, upsetting year. As an American, I can’t wait until I can bury most everything about 2016 in the back corner of the history books.…
“You’ve come a long way, baby!” was a hugely popular phrase back in the late 1960s that I grew up with and still refer to often. I often say it…
"From belonging to an healthiest elite organisation to being hit by a rare disease is a leap which is not easy to accept." What is it about stories? Why do…
Last November, Janet Woodcock - the Director for the FDA's Center for Drug Evaluation and Research - gave the keynote address at the Pulmonary Fibrosis Foundation's summit in Washington, D.C.…
"You'll be fine. You're just depressed." How many times have you heard a doctor tell you that—when you KNOW something is seriously wrong? Marilyn heard the exact same thing. "I ain't…
When diagnosed with idiopathic pulmonary fibrosis (IPF), physical activity is pretty much out of the cards. Or is it? With IPF, heavy scarring in the lungs hardens the tissue and makes…
One of the difficulties facing the IPF community has been a lack of knowledge and awareness about the disease among many doctors and even specialists. An aggressive disease, idiopathic pulmonary…
In 2013, the British Lung Foundation (BLF) released a Patient Charter for people living with IPF, or idiopathic pulmonary fibrosis. In it, they outline the five basic rights of people with…
The world was his audience, and everyone was watching. It was time to say "I have Idiopathic Pulmonary Fibrosis" If you are like most ordinary people, you are likely not familiar…
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