You know what a cool word is? Twibbon What is a Twibbon? Those things you see on people's profile pictures on Facebook and Twitter to show support for what they…
For all you dads out there who have had to learn how to be a father while dealing with the struggles of having a rare disease, you are an inspiration…
Dad's are great at a lot of things. Especially Dad jokes, the kind of jokes that are so cheesy that they are actually kind of funny. Happy Father's Day to…
Happy Father's Day Weekend! Whether you are a father with a rare disease, or a father of a child with a rare disease, you are a brave soul, because every…
Photo by Sandro Georgi Photography As a parent your main job is to protect your child from the terrible things in the world, but of course you know that one…
Fathers are the rock you can count on, always. Here's a poem to all you rare dads who are a dad and then some! Know that you are loved and…
Walking is a popular thing for people to do nowadays when they want to show their support and help raise money for something that is close to their hearts. If…
It's not easy to be a Rare Dad and sometimes it helps to be around other people who are in similar shoes. SALT is a multi-day program created for dads of…
"Health is not valued until sickness comes." - Thomas Fuller June 13-19 is Men's Health Week, and the last day is Father's Day. A great way to stay healthy is…
I wrote this poem about my father. He is not a rare dad, but I feel like he can be an inspiration for those going through hard times. He hurt…
Men's Health Week is June 13th to 19th. It is to remind men to get a check up to help catch preventable illnesses, and encourage early detection and treatment of disease…
Myasthenia Gravis (MG) is also referred to as the snowflake disease because every snowflake is different, much like how MG affects each person differently. Click here and to learn more, courtesy…
On average, women live five years longer than men. Of course we want to spend as many days possible with the men in our lives. June 13th - June 19th…
Fathers often seem to have the great knack for good story telling. Growing up I always wanted a story from my father. This Father's Day, the world should hear the life…
If you know or are a rare dad who is the parent of a child with a rare disease, or are a rare dad who has a rare disease, tell your story! Shed…
Cystinosis is most often diagnosed before the age of two. Through medical advances over the last 20 years the prognosis for those with cystinosis has improved. Now more and more…
May is Lyme Disease Awareness Month. Read more here, be informed and learn how you can be a part of the solution.
Spread the word about Lyme with the Lyme Disease Challenge, then donate to help fight the disease! Take a bite. Share a fact. Pass it on! FACT: Lyme Disease has…
One of the truest ways to help those with rare diseases is to make people aware of them. The more people who are aware, then more people can donate. The more…
The Lyme Disease Challenge can be fun for everyone! Even dogs can make some pretty funny faces and help raise awareness. Get your four legged friend in on the action!…
Are you ready for the Lyme Disease Challenge? Have fun and do something good at the same time: Challenge your friends and make the funniest face you can muster up! Lyme Disease…
Can you and your friends handle the Lyme Disease Challenge? Challenge someone and find out! Take a bite. Share a fact. PASS IT ON! (The funnest part is seeing your…
In the article The Burning Question After a Lyme Diagnosis: What’s Next?, the second part of Alexis Rosen’s story is detailed. A woman whose diagnosis of Lyme disease took eight months.…
The side effects of Lyme disease treatment can be incredibly painful. One side effect is called herxing, also known as the Herxheimer Reaction, which is the body’s reaction to detoxification. This…
It's time to make some faces for Lyme. Do the Lyme Disease Challenge to spread the word about Lyme and have fun making funny faces with your friends! To learn…
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