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Rare Cancer

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Girl with Neuroblastoma Excited for the Holidays
Source: Pixabay

Girl with Neuroblastoma Excited for the Holidays

  • Post author:Andres Rovira
  • Post published:December 7, 2017
  • Post category:Neuroblastoma/Rare Disease

Sophie Walsh is in need of help. She was diagnosed with the rarest of the rare forms of cancer. She was only two years old when her mom, Sandra, and…

Continue Reading Girl with Neuroblastoma Excited for the Holidays
Children’s Health Doctors Get to the Bottom of Girl’s Neuroblastoma
Source: Pixabay

Children’s Health Doctors Get to the Bottom of Girl’s Neuroblastoma

  • Post author:Andres Rovira
  • Post published:October 17, 2017
  • Post category:Neuroblastoma

At first glance, little Victoria Thompson looks like your average happy and healthy toddler. You'd have no idea that once upon a time, she had a tumor on her kidney…

Continue Reading Children’s Health Doctors Get to the Bottom of Girl’s Neuroblastoma
Editor’s Choice: Research is Underway for Rare Cancers

Editor’s Choice: Research is Underway for Rare Cancers

  • Post author:Patient Worthy Contributor
  • Post published:September 22, 2017
  • Post category:Rare Disease

Welcome back Patient Worthians! We are back this week from the 2017 Global Genes Rare Advocacy Summit. Did you attend? If so, what did you learn? Let us know here. This…

Continue Reading Editor’s Choice: Research is Underway for Rare Cancers
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You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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