Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…
Rare disease research faces many obstacles: lack of participants, lack of funding, and lack of interest are just a few. Now, the charity Cerebra has launched a network to take…
PTC Therapeutics has just announced data from the very first study which examined how taking care of a child diagnosed with aromatic L-amino acid decarboxylase (AADC) deficiency can impact caregivers.…
Mustang Bio, a biopharmaceutical company, and City of Hope, a cancer center, have just revealed that their first participant in their Phase 1 clinical trial for leptomeningeal brain tumors including…
NLS Pharma has just announced new data which further supports the mechanism of action of Mazindol. Mazindol is the active ingredient in Quilience, a treatment used for narcolepsy. This therapy…
As reported in News Wise, in Hackensack Meridian Jersey Shore University Medical Center and the Cleveland Clinic, one patient’s unlikely success story led researchers to conclude that a balance of…
According to an article in Healio, Dr. Anisha Dua recently addressed attendees at the ACR Clinical Symposium on the subject of antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis. Dr. Dua is the…
According to a story from Parkinson's News Today, a small study recently demonstrated that fecal transplants could help relieve gastrointestinal problems in Parkinson's disease patients, as well as reducing the…
Connie Colbert, the Director of the Canyon Health and Wellness Clinic, describes what hyperhidrosis is, and what to do if you think you may have it. What is Hyperhidrosis? Hyperhidrosis…
Based on new data, the European Medicines Agency’s Committee for Medicinal Products for Human Use has designated nivolumab and ipilimumab as the frontline treatment for malignant pleural mesothelioma (MPM) in…
Diabetes impacts many of the body's systems because it's an endocrine disorder. People with diabetes have trouble regulating their internal body temperature. As part of this, those with diabetes may…
According to a recent article in the Nursing Center of the Advanced Emergency Nursing Journal, Takotsubo Cardiomyopathy (TC) is a rare syndrome that mimics ST-segment elevation myocardial infarction (STEMI). This…
Corticosteroids are used to treat a wide variety of inflammatory conditions, with asthma and arthritis acting as examples. However, these drugs can result in a variety of side effects, such…
According to a story from asbestos.com, patients surviving for five years or more with pleural mesothelioma is still uncommon. However, in those that do, exposure to lower levels of asbestos…
Written by Harsha K. Rajasimha, MS, PhD & Sharlene Brown, PhD Clinical trials are the regulatory mechanisms agencies like the Food and Drug Administration (FDA) use to evaluate and review…
Research has identified that individuals with sleep issues are at a higher risk for developing chronic diseases. Unfortunately, many with sleep disturbances are undiagnosed. It's estimated that between 40 and…
Triple-negative breast cancer (TNBC), a rare and aggressive form of cancer, occurs when one's cancer is negative for progesterone receptors, estrogen receptors, and an excess of the HER2 protein. This…
Michael E. Williams from the University of Virginia has just been awarded the Mantle Cell Lymphoma Leadership Award by the Lymphoma Research Foundation. This award represents not only his dedication…
Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…
Have you ever thought about whether measuring caffeine levels could give you insight into disease progression? Well according to Parkinson's News Today, researchers have discovered a potential link between…
According to an article in Biospace, Biogen, a biotechnology company headquartered in Cambridge, Massachusetts, presented new data on its multiple sclerosis (MS) therapies at the virtual Meeting of the American…
A recent study has pointed to corneal collagen crosslinking (CXL) as a viable treatment option for children with keratoconus, a rare ocular disorder that impacts the cornea. As pediatric patients…
Anti-glomerular basement membrane disease (anti-GBM disease), formerly known as Goodpasture's syndrome, is a rare, autoimmune condition that impacts the kidneys and lungs. A recent study published in the Journal of…
In 2006, a new, rare disease affecting monochorionic twins was identified and named. Twin Anemia Polycythemia Sequence (TAPS) changed the perception of the complications of monochorionic twins. It started redefining…
Veterinary ophthalmologists at Pennsylvania’s Veterinarian School of Medicine found that LCA in humans mimics the same type of disease in dogs. According to a recent article in Science Daily, vision…
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