A recent study found that a specific bacteria may be the distinguishing factor between cardiac sarcoidosis and other conditions that affect the heart. This data suggests that this bacteria may…
A report titled, “Association of Sarcoidosis With Increased Risk of VTE: A Population-Based Study, 1976 to 2013,” recently released information that patients with sarcoidosis have a 3-fold increased risk for…
Notizie emozionanti per le persone che vivono con sarcoidosi! Vanderbilt University Medical Center (VUMC) ha sviluppato un Centro Sarcoidosi di Eccellenza. Attualmente, il dottor Wonder Drake è il direttore del…
Peter Sadler has been raising funds to support the British Lung Foundation, which funds sarcoidosis research. The 42-year-old recently participated in the Bath-Half marathon. He's been on a mission to run in the…
Exciting news for people living with sarcoidosis! Vanderbilt University Medical Center (VUMC) has developed a Sarcoidosis Center of Excellence. Presently, Dr. Wonder Drake is the director of the center. She…
According to an article from Rare Disease Report, a brand new app has been created for sarcoidosis patients. Created by Misha Rosenbach, the app was developed in partnership with the Foundation for Sarcoidosis Research.…
Does the name Ludwig van Beethoven ring a bell? It should. He was one of the greatest composers the world has ever seen. He also suffered from cirrhosis of the liver, infectious…
Panuveitis refers to generalized inflammation of the uveal tract, the retina, and vitreous humor; in other words, all parts of the eye. Most cases have no known cause, but some…
El 90-95% de las personas que viven con la sarcoidosis, la enfermedad afecta a los pulmones. A medida que crecen granulomas a través de los órganos, que pueden experimentar tos,…
When most people think of inflammatory diseases, they tend to think of conditions that affect the joints, the skin, or organs in the digestive track. But imagine if the inflammation…
¿Qué es la sarcoidosis? ¿Has oído hablar de él? Es una enfermedad inflamatoria que se caracteriza por granulomas, o en términos simples, una colección de células inmunes que se depositan…
You couldn't breathe, you had swollen lymph nodes and a cough that would not go away. You go to the doctor and had some test done. You are told you have…
Bernie Mac was one of my favorite comedians. He grew up on the south side of Chicago, financially poor but determined to rise above his tough beginnings. "I didn't have to…
Uno pensaría que en el mundo actual de la tecnología, estaríamos delante de la curva, especialmente cuando se refiere a las pruebas de diagnóstico / pronóstico. Lo que pasa descubrimiento…
“Healing is a matter of time, but it is sometimes also a matter of opportunity.” – Hippocrates, Greek physician known as “The Father of Modern Medicine” When you’ve been diagnosed…
There is something inherently unfair about seeing your child get sick, and almost every parent in the world would do anything possible to make things better. It can be even…
Sarcoidosis is one of the rare diseases that makes me angry. A good friend of mine has it and it has rendered a once vibrant, active woman into one who…
If you have sarcoidosis, you already know that it's a disease that causes inflammation that in some cases, doesn't go away. The body's immune cells clump together and form granulomas.…
Welcome to this week's Editor's Choice! This week we are highlighting this inspirational, beautiful mother who wants to spread her message. She's currently battling multiple sclerosis in a courageous and proactive way,…
Patient Worthy had the privilege of speaking with Vicky, who shared her story of being diagnosed and living with sarcoidosis. My case was outside the ‘normal’ perimeters because I was…
If you're anything like me, you hate taking medicine, but you know that it's important and necessary to do so when you're living with a chronic illness. However, I'm always…
Sarcoidosis is caused by tiny granulomas forming most commonly in the lungs or lymph nodes and eyes. Doctors believe it is the result of the immune system trying to fight…
we may look different on the outside, but each one of us is unique on the inside, and that holds true more so when it comes to treatment options. I'm…
RESEARCHERS BELIEVE SARCOIDOSIS IS ASSOCIATED WITH AN ABNORMAL IMMUNE SYSTEM RESPONSE, BUT WHAT TRIGGERS THIS RESPONSE IS NOT KNOWN. NOR DO DOCTORS KNOW WHETHER HEREDITY, ENVIRONMENT, OR LIFESTYLE AFFECTS THE…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
