June is Scleroderma Awareness Month: Spreading Rare Disease Awareness
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June is Scleroderma Awareness Month: Spreading Rare Disease Awareness

According to a story from Scleroderma News, June is recognized as Scleroderma Awareness Month. While physical distancing as a result of the ongoing coronavirus/COVID-19 pandemic may keep some folks at…

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The Importance of Cancer Screenings in Patients with Scleroderma, Dermatomyositis
Elizabeth M. Dugan, Adam M. Huber, Frederick W. Miller, Lisa G. Rider / CC BY-SA (https://creativecommons.org/licenses/by-sa/3.0)

The Importance of Cancer Screenings in Patients with Scleroderma, Dermatomyositis

  This year, because of COVID-19, many healthcare-related events and symposiums have been moved online. However, that doesn't mean that the insights are any less helpful! In the virtual ACR…

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Scleroderma Symptoms Shown to Be Alleviated with Tracleer Treatment
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Scleroderma Symptoms Shown to Be Alleviated with Tracleer Treatment

by Danielle Bradshaw from In The Cloud Copy A year-long study has shown that Tracleer greatly reduces the skin-related symptoms of scleroderma. The results also showed that although it helped…

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ICYMI: Privigen Granted Orphan Drug Designation For Treatment of Systemic Scleroderma
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ICYMI: Privigen Granted Orphan Drug Designation For Treatment of Systemic Scleroderma

CSL Behring has recently received the Orphan Drug designation for Privigen for the treatment of systemic scleroderma. Privigen has also been granted the Fast Track designation. This therapy has been…

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Researchers Identify Method to Help Detect Pulmonary Arterial Hypertension in Systemic Sclerosis Patients
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Researchers Identify Method to Help Detect Pulmonary Arterial Hypertension in Systemic Sclerosis Patients

According to a story from Pulmonary Hypertension News, a recent study has determined that cardiopulmonary exercise testing can be an effective method to help identify systemic sclerosis patients that are…

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Findings From a Mouse Study Could Have Major Implications for Scleroderma
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Findings From a Mouse Study Could Have Major Implications for Scleroderma

According to a story from Scleroderma News, the results of a recent mouse study could have significant implications for the future of scleroderma treatment. In the study, scientists used a…

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Making History: First Drug Approved for Scleroderma-Associated Interstitial Lung Disease
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Making History: First Drug Approved for Scleroderma-Associated Interstitial Lung Disease

According to a story from finanzen.at, the drug nintedanib (marketed as Ofev) has officially been approved by the US Food and Drug Administration (FDA) as a treatment for interstitial lung…

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First Human Trial Completed for Experimental Scleroderma and Multiple Sclerosis Drug
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First Human Trial Completed for Experimental Scleroderma and Multiple Sclerosis Drug

According to a story from Financial Buzz, the drug developer Emerald Health Pharmaceuticals, Inc., recently announced that the company had completed a phase 1 clinical trial for its experimental drug…

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This Form of Rare Interstitial Lung Disease is Bad News for Scleroderma Patients
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This Form of Rare Interstitial Lung Disease is Bad News for Scleroderma Patients

According to a story from Scleroderma News, a recent study has recommended that scleroderma patients with a rare, poorly understood form of interstitial lung disease (ILD) should receive regular monitoring…

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The Drug Abatacept Appears Beneficial in Systemic Sclerosis Despite Missing Primary Endpoint
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The Drug Abatacept Appears Beneficial in Systemic Sclerosis Despite Missing Primary Endpoint

According to a story from Medpage Today, a recent study testing the medication abatacept (marketed as Orencia) as a treatment for diffuse cutaneous systemic sclerosis concluded with rather mixed results.…

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Study Findings Suggest Concentration of Immune Cells Could Help Predict Systemic Sclerosis
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Study Findings Suggest Concentration of Immune Cells Could Help Predict Systemic Sclerosis

According to a publication from Scleroderma News, a recent study suggests that blood concentrations of certain immune cells could correlate with the severity of cases of systemic sclerosis. About Systemic…

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FDA Advisory Committee Recommends Approval of Drug to Treat Interstitial Lung Disease Caused by Systemic Sclerosis

According to a story from Healio, the US Food and Drug Administration's (FDA) Arthritis Advisory Committee recently voted 10-7 in favor of recommending the drug nintedanib as a treatment for…

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Scleroderma: The Skin-Hardening Disease Affecting Two UK Sisters
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Scleroderma: The Skin-Hardening Disease Affecting Two UK Sisters

An article from Comic Sands recently covered the story of a UK mother, Alison Beesley, who is now committed to taking care of her daughters Eliza and Eleanor full time. Eliza is nine years old and…

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“Stampede Scleroderma” Event for Systemic Sclerosis held at the Detroit Zoo Raised Over 130,000 Dollars for Research

Systemic Sclerosis Systemic Sclerosis (Systemic Scleroderma) is a rare disease which results in the hardening of the connective tissues in the body as well as the skin. It can affect…

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Drug Displays Potential in Treating Lung Symptoms of Systemic Sclerosis
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Drug Displays Potential in Treating Lung Symptoms of Systemic Sclerosis

According to a story from Boehringer Ingelheim Pharmaceuticals, Inc., the company has recently announced positive results from a phase 3 clinical trial testing the company's drug nintedanib (marketed as Ofev)…

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