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Daily Archives: December 28, 2015

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She Spoke Into Her Answering Machine, What Played Shook Her

She Spoke Into Her Answering Machine, What Played Shook Her

  • Post author:Erica Zahn
  • Post published:December 28, 2015
  • Post category:Dystonia/Rare Disease

Have you ever heard your voice on a recording and thought, "Is that what I really sound like?" You rehearse exactly what you want to say, repetitively hitting the restart…

Continue Reading She Spoke Into Her Answering Machine, What Played Shook Her
This Mile High Club for Patients is Not What You Think

This Mile High Club for Patients is Not What You Think

  • Post author:Erica Zahn
  • Post published:December 28, 2015
  • Post category:HAE/Rare Disease

Virginia Beach resident, Tina, has a motto: "I'm more than a conqueror!" Her medical journey began in 1993 when she started to experience the swelling of various parts of her body.…

Continue Reading This Mile High Club for Patients is Not What You Think
You Know What’s Great? Getting Real with This Woman with Cushing’s!
Source: Pexels.com

You Know What’s Great? Getting Real with This Woman with Cushing’s!

  • Post author:EmpatheticBadass
  • Post published:December 28, 2015
  • Post category:Rare Disease

You know a person living with a chronic illness is giving you the REAL story when, after being asked, “What does your Cushing’s disease affect?” she (in this case the…

Continue Reading You Know What’s Great? Getting Real with This Woman with Cushing’s!
Why Healthcare Is Looking To Starbucks For Expert Advice

Why Healthcare Is Looking To Starbucks For Expert Advice

  • Post author:Winnie Nash
  • Post published:December 28, 2015
  • Post category:Familial Hypercholesterolemia/Rare Disease

Question: How can healthcare companies provide “better patients with better services at better costs?” This was the question on everyone’s mind during the FORBES Healthcare Summit last month, especially Stacey…

Continue Reading Why Healthcare Is Looking To Starbucks For Expert Advice
He Gave Up Beer for 115 Days and Something Remarkable Happened

He Gave Up Beer for 115 Days and Something Remarkable Happened

  • Post author:Erica Zahn
  • Post published:December 28, 2015
  • Post category:Cystic Fibrosis/Rare Disease

When radio personality, Mike Farwell, and three of his intrepid listeners decided to give up drinking beer for 115 days (ending on Christmas) he asked the Block 3 Brewing Company in…

Continue Reading He Gave Up Beer for 115 Days and Something Remarkable Happened
New Year, New You! What’s Your 2016 Resolution?

New Year, New You! What’s Your 2016 Resolution?

  • Post author:Patient Worthy Contributor
  • Post published:December 28, 2015
  • Post category:Dysautonomia/Lyme Disease/POTS/Rare Disease

Ah the New Year. Before I was diagnosed with a chronic illness, I used to make similar, casual New Year's resolutions like "drink less alcohol" or "spend less money eating…

Continue Reading New Year, New You! What’s Your 2016 Resolution?

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