Sue, Stats, and CIU Part 3

• Post author:Patient Worthy Contributor
• Post published:January 14, 2016
• Post category:Chronic Idiopathic Urticaria/Rare Disease

Click here for part one and here for part two of Sue's Story! When we left off Sue was battling hives (everywhere) and had received the diagnosis of Chronic Idiopathic…

Continue Reading Sue, Stats, and CIU Part 3

Patient Worthy Wins Pharma Choice Award

• Post author:James Stone
• Post published:January 14, 2016
• Post category:Rare Disease

Henderson, NV, January 14, 2016 – The life science trade publication PM360 today announced that Patient Worthy™ won Gold in the category “Consumer Website” at the annual Pharma Choice Awards.…

Continue Reading Patient Worthy Wins Pharma Choice Award

We're number one, and we want to be number one for you!

Yay, Patient Worthy Wins Thanks to You!

• Post author:James Stone
• Post published:January 14, 2016
• Post category:Rare Disease

Can you believe it? Patient Worthy has made it to the big times by winning an award for being the best patient-centric consumer website. We're stoked! But here's what really counts:…

Continue Reading Yay, Patient Worthy Wins Thanks to You!

Want to Break Barriers? Share Your Inspirational Video and Win Big!

• Post author:Alisha Stone
• Post published:January 14, 2016
• Post category:Rare Disease

Listen up, people! Are you living with a neurological disease or condition? Do you want to inspire people by sharing your personal story on video? If so, the American Academy…

Continue Reading Want to Break Barriers? Share Your Inspirational Video and Win Big!

5 Reasons Why Your Child Needs to Go to the IDF Teen Escape

• Post author:Winnie Nash
• Post published:January 14, 2016
• Post category:CAPS/CVID/Primary Immunodeficiencies/Rare Disease

A weakened immune system doesn’t have to stop the fun, that’s for sure. The Immune Deficiency Foundation will hold two Teen Escapes this summer— an awesome weekend away for teens…

Continue Reading 5 Reasons Why Your Child Needs to Go to the IDF Teen Escape

Pixabay

The Remarkable New Technology Everyone with CF Will Want

• Post author:EmpatheticBadass
• Post published:January 14, 2016
• Post category:Cystic Fibrosis

We at PatientWorthy are always on the lookout for ways to make living with a chronic illness easier. And we’ve heard about new technology that might just be a godsend…

Continue Reading The Remarkable New Technology Everyone with CF Will Want

UPDATE! The Power of a Personal Story to Change Minds: Limitless

• Post author:Rebekah
• Post published:January 14, 2016
• Post category:Uncategorized

Have you always wanted to share your story with Congress to ask for more help with your Rare Disease?  The Every Life Foundation is making it easier with travel stipends…

Continue Reading UPDATE! The Power of a Personal Story to Change Minds: Limitless