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Daily Archives: June 3, 2016

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5 Usuarios de Instagram dignos de pacientes a considerar a seguir con #CVID

5 Usuarios de Instagram dignos de pacientes a considerar a seguir con #CVID

  • Post author:Patient Worthy Contributor
  • Post published:June 3, 2016
  • Post category:CVID/Rare Disease

Viviendo con ICV? Aprendiendo a controlarlo? PatientWorthy te está buscando en Instagram si estás viviendo con inmunodeficiencia variable común, ICV. #PatientWorthy Para compartir sus fotos con nosotros! Y comentar a…

Continue Reading 5 Usuarios de Instagram dignos de pacientes a considerar a seguir con #CVID
Editor’s Choice: 8 Years of Lyme, I Run 4, and More!

Editor’s Choice: 8 Years of Lyme, I Run 4, and More!

  • Post author:Patient Worthy Contributor
  • Post published:June 3, 2016
  • Post category:Acromegaly/Lyme Disease/Rare Disease/Wilson Disease

Happy Friday Patient Worthians! This week, we have some riveting stories by three PW contributors. Firstly, we have Alexis battling Lyme disease for 8 years and a surprising ending to Part 1…

Continue Reading Editor’s Choice: 8 Years of Lyme, I Run 4, and More!
Woman with Cystic Fibrosis is Breathing Fitness into Life

Woman with Cystic Fibrosis is Breathing Fitness into Life

  • Post author:Patient Worthy Contributor
  • Post published:June 3, 2016
  • Post category:Cystic Fibrosis

Bearing both common missense mutations ΔF508 and G551D, Briauna was diagnosed with Cystic Fibrosis (CF) as a 10 month old baby. As a child living and growing up with CF,…

Continue Reading Woman with Cystic Fibrosis is Breathing Fitness into Life
Muckle-Wells Breakthrough Holds Out Hope for a Cure
Source: Pixabay

Muckle-Wells Breakthrough Holds Out Hope for a Cure

  • Post author:Ronald Ledsen
  • Post published:June 3, 2016
  • Post category:CAPS/Muckle-Wells Syndrome/Rare Disease

Researchers around the world are constantly looking for new leads in combating chronic illnesses, and they’re making progress all the time. But it’s not often they make a discovery like…

Continue Reading Muckle-Wells Breakthrough Holds Out Hope for a Cure
What Do You Get When You Mix Lyme Disease with Adolescence?

What Do You Get When You Mix Lyme Disease with Adolescence?

  • Post author:Patient Worthy Contributor
  • Post published:June 3, 2016
  • Post category:Lyme Disease

Alexis Plofchan is now 22 years old. In parts 1 and 2 of her interview, Alexis detailed her journey with Lyme disease from pre-diagnosis to post-diagnosis and how Lyme changed…

Continue Reading What Do You Get When You Mix Lyme Disease with Adolescence?
When It Hurts to be a Kid: Pediatric Autoimmune Diseases
Pixabay

When It Hurts to be a Kid: Pediatric Autoimmune Diseases

  • Post author:Erica Zahn
  • Post published:June 3, 2016
  • Post category:Ankylosing Spondylitis/CVID/Rare Disease

Just how far does the apple fall from the tree? One in 12 people in the Western hemisphere suffer from autoimmune diseases such as juvenile idiopathic arthritis and Crohn's disease. A…

Continue Reading When It Hurts to be a Kid: Pediatric Autoimmune Diseases

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