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Daily Archives: July 6, 2016

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Country Crooner Launches Breathless Campaign to Raise IPF Awareness

Country Crooner Launches Breathless Campaign to Raise IPF Awareness

  • Post author:PW Blogger
  • Post published:July 6, 2016
  • Post category:IPF/Rare Disease

If you’re a fan of country music, you might recognize Joe Nichols’ name because of chart-busting hits like, “Gimmie That Girl,” “Sunny and 75,” and “Freaks Like Me." But Nichols…

Continue Reading Country Crooner Launches Breathless Campaign to Raise IPF Awareness
Are You as Fierce as This Awesome EDS Woman?
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Are You as Fierce as This Awesome EDS Woman?

  • Post author:PW Blogger
  • Post published:July 6, 2016
  • Post category:Ehlers-Danlos Syndrome/Rare Disease

Just getting an accurate diagnosis can be a tremendous challenge for people living with the connective tissue disorders that fall under the Ehlers-Danlos Syndrome umbrella. Common misdiagnoses include fibromyalgia, arthritis,…

Continue Reading Are You as Fierce as This Awesome EDS Woman?
Don’t Let Chronic Illness Make You Think You’re Weak

Don’t Let Chronic Illness Make You Think You’re Weak

  • Post author:Rebekah
  • Post published:July 6, 2016
  • Post category:Rare Disease

You've got more inner strength than you realize! we all will sometime feel run-down, or scared, or hopeless, especially if living with a chronic illness. you have handled everything that's…

Continue Reading Don’t Let Chronic Illness Make You Think You’re Weak
How to Survive When POTS is Just One of Your Rare Diseases
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How to Survive When POTS is Just One of Your Rare Diseases

  • Post author:Erica Zahn
  • Post published:July 6, 2016
  • Post category:Addison's Disease/POTS/Rare Disease

Having a rare disease like Addison’s is enough of a challenge for most people. Addison’s disease is a disorder of the adrenal glands which causes extreme fatigue. Now, imagine having…

Continue Reading How to Survive When POTS is Just One of Your Rare Diseases
Why Will His First Words Leave You Speechless?

Why Will His First Words Leave You Speechless?

  • Post author:PW Blogger
  • Post published:July 6, 2016
  • Post category:Lennox-Gastaut syndrome/Rare Disease

When Gina Walker's son spoke his first words, she broke down and cried. Not that the words, "Hello, Mom," were so revolutionary; she cried because James was 16 and it…

Continue Reading Why Will His First Words Leave You Speechless?
Do You Have The Strength Of This Man With Churg-Strauss?

Do You Have The Strength Of This Man With Churg-Strauss?

  • Post author:Erica Zahn
  • Post published:July 6, 2016
  • Post category:Churg-Strauss Syndrome/Rare Disease

Chris Ormerod, 55, is a former goalkeeper for the Padiham Football Club (which, if you live in the United States is the game we call "soccer"). He suffers from Churg-Strauss syndrome, a…

Continue Reading Do You Have The Strength Of This Man With Churg-Strauss?
Mejora tu confort con la espondilitis anquilosante en 3 pasos
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Mejora tu confort con la espondilitis anquilosante en 3 pasos

  • Post author:Patient Worthy Contributor
  • Post published:July 6, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

En serio, ¿quién no ama las listas? Y listas sobre cómo gestionar mejor la espondilitis anquilosante? Aun mejor. Así que por suerte para nosotros, Everyday Health presenta toneladas de listas…

Continue Reading Mejora tu confort con la espondilitis anquilosante en 3 pasos

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