If you don't know what it's like to live with dystonia, then you need to watch this Youtube video by Shawn Fairchild. A brave man living with dystonia, Fairchild shows…
Don't miss the registration period for the MDS Patient and Family Forum Sept. 10th! This event is free, sponsored by the MDS Foundation.The event will cover things like Therapies and…
There's good news for people living with Hereditary Angioedema (HAE), the genetic disorder that results in sudden and severe swelling basically anywhere throughout the body. As those living with HAE know,…
If you've got Fabry Disease and you live in Canada, you've GOT to check this out. If you don't have Fabry Disease, allow me to clue you in: It's a…
I discovered this neurologist, my current neurologist, through an occupational therapist who was trying to help me learn to live with whatever condition I had at the time, because I…
el blog de Honest Abe, un cajón de sastre sitio para juegos de video y la ciencia, ahora puede añadir campeón enfermedad rara con su descripción. El verdadero Honest Abe…
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