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Daily Archives: December 8, 2016

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Clinical Trials Have Consequences and Not Just for Kallmann Syndrome
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Clinical Trials Have Consequences and Not Just for Kallmann Syndrome

  • Post author:Erica Zahn
  • Post published:December 8, 2016
  • Post category:Kallmann syndrome/Rare Disease

I vividly remember being four years old and going to the doctor with my mother and sister for a very important event: my sister and I were getting two vaccinations.…

Continue Reading Clinical Trials Have Consequences and Not Just for Kallmann Syndrome
The Narcolepsy Article of Your Dreams
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The Narcolepsy Article of Your Dreams

  • Post author:Sabina Kennedy
  • Post published:December 8, 2016
  • Post category:Narcolepsy/Rare Disease

Some people would give anything to be able to get take a nap or just fall sleep whenever they wanted too. But that is not the case for someone who…

Continue Reading The Narcolepsy Article of Your Dreams
Why The Facial Pain Association is the Knight for TN
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Why The Facial Pain Association is the Knight for TN

  • Post author:Farrah Fontaine
  • Post published:December 8, 2016
  • Post category:Rare Disease/Timely/Trigeminal Neuralgia (Tic Douloureux)

Are you a person living with trigeminal neuralgia (TN)? Are you aware of the Facial Pain Association (FPA)? Well, you should be. This organization is incredible!! Focused on people with TN, this…

Continue Reading Why The Facial Pain Association is the Knight for TN
How One Courageous Woman with NMO Inspired Me
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How One Courageous Woman with NMO Inspired Me

  • Post author:Alisha Stone
  • Post published:December 8, 2016
  • Post category:Devic's Syndrome (Neuromyelitis Optica)/Rare Disease

In the midst of an ugly American presidential post-election, I am actively looking for inspiration to distract me from this mess. And man, was I lucky! There’s a gal who’s living…

Continue Reading How One Courageous Woman with NMO Inspired Me
Whee! These are Exciting Times for FH!
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Whee! These are Exciting Times for FH!

  • Post author:PW Blogger
  • Post published:December 8, 2016
  • Post category:Familial Hypercholesterolemia

Although people living with familial hypercholesterolemia (FH) continue to work for increased awareness about this disease, it is an exciting time for those who are living with it. According to…

Continue Reading Whee! These are Exciting Times for FH!
Vas a hacer tu danza feliz cuando leas acerca de este niño!
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Vas a hacer tu danza feliz cuando leas acerca de este niño!

  • Post author:Patient Worthy Contributor
  • Post published:December 8, 2016
  • Post category:Cystic Fibrosis/Rare Disease

Alguna vez has tenido uno de esos días en los que no se sentía muy entusiasmado acerca de su vida? Tú sabes de qué estoy hablando. Los blues de ho-hum.…

Continue Reading Vas a hacer tu danza feliz cuando leas acerca de este niño!

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