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Daily Archives: March 2, 2017

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This is the NASH Research That Has Doctors Excited
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This is the NASH Research That Has Doctors Excited

  • Post author:Ronald Ledsen
  • Post published:March 2, 2017
  • Post category:Nonalcoholic steatohepatitis/Rare Disease

Anyone who has been paying attention to, well, life, knows that alcohol abuse utterly destroys your liver over time. It does so by depositing lots and lots of lovely fat…

Continue Reading This is the NASH Research That Has Doctors Excited
How One Boxing Coach is Taking the Fight to Parkinson’s
Source: pixabay.com

How One Boxing Coach is Taking the Fight to Parkinson’s

  • Post author:Ronald Ledsen
  • Post published:March 2, 2017
  • Post category:Parkinson's Disease/Rare Disease

It’s probably symptomatic of our celebrity culture that many people tend to associate diseases not with symptoms, but with famous people. For example: Multiple Sclerosis is what Richard Pryor and…

Continue Reading How One Boxing Coach is Taking the Fight to Parkinson’s
Myasthenia Gravis Foundation of America’s National Conference
Pixabay

Myasthenia Gravis Foundation of America’s National Conference

  • Post author:Patient Worthy Contributor
  • Post published:March 2, 2017
  • Post category:Myasthenia Gravis/Rare Disease

As Erica Zahn wrote back in February, MGFA's National Conference in New Orleans, LA offers patients and families the chance to hear the latest news, research and treatments for myasthenia gravis.…

Continue Reading Myasthenia Gravis Foundation of America’s National Conference
Baby Wrapped in Plastic to Save Her Life
[Source: pixabay.com]

Baby Wrapped in Plastic to Save Her Life

  • Post author:Al Pendleton
  • Post published:March 2, 2017
  • Post category:Gastroschisis

It’s hard to imagine what it would be like to hear that there is something wrong with your unborn baby. For those of us who have never heard this, it…

Continue Reading Baby Wrapped in Plastic to Save Her Life
The More She Gives to Hansen’s Disease, the More She Gets Back
[Source: pixabay.com]

The More She Gives to Hansen’s Disease, the More She Gets Back

  • Post author:Sabina Kennedy
  • Post published:March 2, 2017
  • Post category:Hansen's disease

A stigma is a negative view of a person based on something about him or her. If you think about it, many illnesses get stigmatized—not just mental illness. People with…

Continue Reading The More She Gives to Hansen’s Disease, the More She Gets Back
¿Qué tienen que ver cucharas con la enfermedad cronica?

¿Qué tienen que ver cucharas con la enfermedad cronica?

  • Post author:Patient Worthy Contributor
  • Post published:March 2, 2017
  • Post category:Ankylosing Spondylitis/CAPS/CVID/HAE/Rare Disease

  Al navegar a través de Tumblr o leer tweets, se ha preguntado alguna vez, "¿Qué es un spoonie?" Es el momento de averiguarlo. En primer lugar, un spoonie es…

Continue Reading ¿Qué tienen que ver cucharas con la enfermedad cronica?

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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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