Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: January 1, 2018

  1. Home>
  2. 2018>
  3. January>
  4. 1
Family Continues the Search for a Liver Donor for Their Baby
Source: Pixabay

Family Continues the Search for a Liver Donor for Their Baby

  • Post author:Meagan Fulps
  • Post published:January 1, 2018
  • Post category:Biliary Atresia

Ryan Cole is a beautiful baby. You would never know from looking at him that he was struggling for life fighting a rare disease called biliary atresia, reported Courier Mail.…

Continue Reading Family Continues the Search for a Liver Donor for Their Baby
Gene Modifying Therapy Has Important New Breakthrough
Source: Pixabay

Gene Modifying Therapy Has Important New Breakthrough

  • Post author:Jean Martell
  • Post published:January 1, 2018
  • Post category:Muscular Dystrophy/Rare Disease

One of the medical research field's biggest developments recently - within the last 5 years! - is a new form of gene editing, also know as genome editing. Gene editing refers to…

Continue Reading Gene Modifying Therapy Has Important New Breakthrough
A Nigerian Senator Just Gave 15,000 People Free Eye Treatment
source: pixabay.com

A Nigerian Senator Just Gave 15,000 People Free Eye Treatment

  • Post author:James Moore
  • Post published:January 1, 2018
  • Post category:Glaucoma/Rare Disease

Around 15,000 people are to receive free eye treatment thanks to the efforts of Senator Mustafa Bukar. The senator represents the Katsina North Senatorial Zone. Senator Bukar announced the event…

Continue Reading A Nigerian Senator Just Gave 15,000 People Free Eye Treatment
For Opioid Addiction, Sea Snails Come to the Rescue
Source: Pixabay

For Opioid Addiction, Sea Snails Come to the Rescue

  • Post author:Andres Rovira
  • Post published:January 1, 2018
  • Post category:Rare Disease

Drug research is taking a plunge to the underwater abyss. The nation's opioid crisis has been declared a national public health emergency. Along with the Department of Defense, the University…

Continue Reading For Opioid Addiction, Sea Snails Come to the Rescue
Football Dream Comes True for Child with Chiari Malformation
Source: Pixabay.com

Football Dream Comes True for Child with Chiari Malformation

  • Post author:Samuel Sachs
  • Post published:January 1, 2018
  • Post category:Chiari Malformation

Many young children admire professional athletes. They dream of becoming one themselves, or at the very least aspire to meet them. For Jase Johnson, a child with Chiari malformation, this…

Continue Reading Football Dream Comes True for Child with Chiari Malformation
Maria Menounos On Brain Tumor and The Industry
Source: Pixabay

Maria Menounos On Brain Tumor and The Industry

  • Post author:Andres Rovira
  • Post published:January 1, 2018
  • Post category:Brain Cancer

Maria Menounos's talent has graced the TV screen, American journalism and occasionally, the world of professional wrestling. With WWE, she serves as a hardcore ambassador to the company. She's a…

Continue Reading Maria Menounos On Brain Tumor and The Industry
New Trial to Examine Higher Doses of Approved Treatment in Ankylosing Spondylitis
StockSnap / Pixabay

New Trial to Examine Higher Doses of Approved Treatment in Ankylosing Spondylitis

  • Post author:Donald Blake
  • Post published:January 1, 2018
  • Post category:Ankylosing Spondylitis/Rare Disease

Good news for patients who suffer from ankylosing spondylitis (AS). There may soon be a new option for treating their disease if the results of a new trial support the…

Continue Reading New Trial to Examine Higher Doses of Approved Treatment in Ankylosing Spondylitis
These Two Procedures Could Change The Way Doctors Treat Hydrocephalus
Source: Pixabay

These Two Procedures Could Change The Way Doctors Treat Hydrocephalus

  • Post author:James Moore
  • Post published:January 1, 2018
  • Post category:Hydrocephalus/Rare Disease

A new study comparing two different treatments demonstrates that both could be effective in treating hydrocephalus. This condition is characterized by a buildup of cerebrospinal fluid inside the brain. In…

Continue Reading These Two Procedures Could Change The Way Doctors Treat Hydrocephalus

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info