Over a Hundred Rare Disease Patient Groups Are Voicing Their Support of Medicaid Formulary Access
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Over a Hundred Rare Disease Patient Groups Are Voicing Their Support of Medicaid Formulary Access

According to a story from the National Organization for Rare Disorders, patient advocacy organizations are joining forces to send letters to Medicaid directors across the USA to advocate for the…

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A Girl From Colorado is Receiving An Experimental Treatment for Her Batten Disease
Photo courtesy of Julia Vitarello

A Girl From Colorado is Receiving An Experimental Treatment for Her Batten Disease

According to an article from Times-Call Regional News, a seven year old girl named Mila Makovec has just begun an experimental treatment for Batten disease. Originally from Boulder County, Colorado,…

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