Maine Legislative Bill Challenges Step Therapy, Which Allows Insurers to Make Care Decisions
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Maine Legislative Bill Challenges Step Therapy, Which Allows Insurers to Make Care Decisions

Many medical insurers follow a practice known as step therapy. A new law presented to legislators in Maine proposes to protect patients from such practices. In her column for Central…

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Man With Soft Tissue Sarcoma is Refusing to Let His Diagnosis Spoil His Recent Marriage
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Man With Soft Tissue Sarcoma is Refusing to Let His Diagnosis Spoil His Recent Marriage

According to a story from the Peterborough Telegraph, James Willis received a disaster diagnosis on his first Valentine's Day after getting married at age 29. James had been worried about…

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Australian Boy With Spinal Muscular Atrophy is Now Able to Get Critical Treatment
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Australian Boy With Spinal Muscular Atrophy is Now Able to Get Critical Treatment

According to a story from the Sydney Morning Herald, two-year-old William McLennan, son of Naomi Taylor and Ben McLennan, was diagnosed with spinal muscular atrophy about a year ago. The…

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The UK Government is Being Petitioned to Hold a Referendum on Cannabis
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The UK Government is Being Petitioned to Hold a Referendum on Cannabis

The UK government is being petitioned to hold a referendum on the decriminalisation of the drug cannabis. This has implications for people with diseases that may be helped by using…

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Increasing Awareness Brings More Support for Rare Disease Patients
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Increasing Awareness Brings More Support for Rare Disease Patients

The National Center for Advancing Translational Sciences (NCATS) supports rare disease patients and their communities. They provide translational research funding, tools and other resources that are helping to address unique…

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An Experimental Treatment for FSHD Has Been Awarded Fast Track Designation by the FDA
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An Experimental Treatment for FSHD Has Been Awarded Fast Track Designation by the FDA

Acceleron Pharma has just received Fast Track designation from the US Food and Drug Administration (FDA) for their experimental treatment ACE-083 designed to treat patients with facioscapulohumeral muscular dystrophy (FSHD).…

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