February is Turner Syndrome awareness month! Turner Syndrome is a chromosomal condition that affects approximately one in every 2,000 women. The condition occurs when a woman lacks all or part…
Michelle Myers, a mother of seven and American citizen who has never been out of the country, suffers from a rare disease that causes her to wake up with different…
This Wednesday, the last day of February is internationally-recognized Rare Disease Day - a day when we realize that in fact - rare diseases are not so rare. There are…
According to a story from the Sun Herald, one in ten Mississippi residents suffer from one of the 7,000 diseases that are considered 'rare' in the United States. In the…
According to a story from brightsurf.com, a student at Clemson University discovered twenty-two different genes that are associated with the formation of glioblastoma, a rare and aggressive type of brain…
According to a story from independent.ie, acclaimed author Emma Hannigan announced that her final options for treatment had been exhausted in her fight with BRCA-mutated breast cancer. Her doctors have…
Keeping a smile on 13-year-old Bryce Fisher's face is starting to get difficult. When all of his friends are going to school and involving themselves in fun activities, Bryce has…
Natalie Grant, a critically acclaimed Christian artist, gets a Grammy nomination when she needed it the most. The Tennessean shared her story of undergoing voice threatening thyroid surgery to remove…
The Mercury News originally reported that a new cannabis based drug found success with reducing epileptic episodes in patients with Lennox-Gastaut Syndrome. They hope to have the drug available on…
Read Part 1 of Amy's Acromegaly Story here. The doctors told me that they felt the surgery removing the tumor was successful, but because of the position and size of…
According to a story from CNNMoney, Scott Gottlieb, the current commissioner of the US Food and Drug Administration (FDA), said that he plans to curtail high drug prices and go…
According to stories from Wave3 News and WHAS 1, high schooler Jesse Schott of Bullitt County is in his third battle with brain cancer. At his local high school, Schott is…
Talk show titan Wendy Williams (How you doin'?!) announced at the top of her daily talk show that she has been diagnosed with the rare disease Graves’ disease and hyperthyroidism. Graves' disease…
Prince William has taken the last several months to get out and educate himself in worlds he's unfamiliar with. Today reported his recent venture to observing robotic surgery, which came…
February 28th has become an internationally recognized day for Rare Disease awareness and advocacy. Originally reported by Rare DR, Marquette University, in conjunction with Harmony 4 Hope, H4H, will put…
According to a story from MedicalXpress.com, a team of Chinese researchers successfully regenerated lung tissue in a patient using stem cells transplants. Although it is still in its infancy, growing…
Lydia, a 16-year-old student at Ng'iya Girls High, was sent home permanently due to her rare disorder, reports Daily Nation. Lydia suffers from a disease called Cord Ischemia, and the…
According to a story from BBC News, a total of around 20,000 people in the UK were born with spina bifida and major brain damage after their mothers were given…
According to a story from Business Wire, selumetinib, a drug in development for the treatment for neurofibromatosis type 1, was recently granted Orphan Drug Designation by the Food and Drug…
Bridget Ames is a delightful, bright, smiling ball of energy who was told all the odds would be against her at a young age. Originally reported by Cape Cod Times,…
The Westmorland Gazette reports that a new drug called Perjeta, has been given the thumbs up to treat women with metastatic breast cancer in England. Metastatic breast cancer is when one's…
The Lewis family has lived through it all. Their first born was diagnosed with spinal muscular atrophy (SMA) and did not live long, having passed away in 2013, reports Deseret News. And…
The O'Sullivan family had three very healthy babies before Drake was born. His blue eyes energetically said hello and his weight met all health standards, yet it wasn't until three…
According to an article from Parkinson's News Today, a recent analysis testing transcranial magnetic stimulation demonstrated that the procedure was not effective in treating the depression that is a common…
According to a story from the Irish Mirror, eleven year old Cezy Fosca, who has a rare condition called Morquio syndrome, has lost access to the only drug available that…
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