A new medical educational platform called the HealthVoyager has been released and is now being utilized following a collaboration with the Boston Children's Hospital and Klick Health, reports PR News…
Many cancers employ a sort of genetic smoke screen that allows them to hide from the body’s immune system. One variety of immunotherapy, however, may be able to clear the…
You might think that completing cancer treatment and surviving the terrible experience would be the ultimate relief, yet, a new report shares the heightened stress cancer survivors face, reports CBC…
According to a story from unmultimedia.org, a recent report has revealed that there are twenty countries across the world that still discriminate against people with Hansen's disease, also known as…
According to a story from Politico, the two legislative bodies of the Virginia General Assembly, the House of Delegates and the Senate of Virginia, passed vastly different budgets last week,…
Christopher Barker is everything you'd expect in a 3-year-old. He's happy, loud, and full of life, so it was a devastating shock to hear that he had a fatal disease,…
According to a story from fosters.com, a twelve year old boy that survived a battle with brain cancer has begun playing ice hockey, his favorite sport, once again. Levi Whitcomb…
If you or someone you love has multiple sclerosis, you probably know a bit about myelin. The human body needs to protect its crucial nerve cells, so it surrounds them…
According to a story from macleans.ca, eight-year-old Mason Stewart has been dealing with the effects of spinal muscular atrophy since he began to walk; he developed an unusual walking gait…
Brandi Lawrey describes her son, Gavin, as a little man because he continually shows bravery and courage well above his age, reports News-Press. Gavin was diagnosed with a rare mitochondrial…
According to a story from Science Daily, patients with cystic fibrosis have to deal with higher concentrations of bacteria in the lungs within their first few years of life, which…
United in Progress is the tag line for a unique collaborative effort to speed progress in identifying, understanding and treating hemophilia: My Life Our Future. Increasingly in the area of rare…
According to a story from macleans.ca, Julia Alton felt hopeless when she first started to experience the symptoms of her Fabry disease. However, she refused to let the disease hold…
England’s National Institute for Health and Care Excellence (NICE) recently approved three new thyroid cancer treatments for their National Health Service (NHS). The new treatments provide a wider variety of…
According to an article from kait8.com, the pharmaceutical company Polaryx announced that its experimental drug PLX-200 has received Orphan Drug Designation from the European Medicines Agency (EMA) for the treatment…
Fashion blogger Yavanna Keogh who runs Makeupmonster just took to social media the devastating news of her son's recent diagnosis, first reported by Mirror. Yavanna and her partner from Dublin,…
People living with sickle cell disease should have a new option for treatment in the not-too-distant future. In addition to the blood transfusions and bone marrow transplants from healthy donors, a…
Happy Rare Disease Week, Patient Worthians! As we wind up after a week of celebrating the rare patient community, support networks, and advocacy, we want to highlight four rare disease…
According to a story from MSN, Heather Huus is living life without a stomach. This may seem impossible, but keeping her stomach could have made things far worse for her.…
Last month, 125 rare disease patient organizations sent a letter to Medicaid directors from individual states highlighting the importance of Medicaid access for rare disease patients. "As organizations representing millions…
A strain of bacteria found in milk may trigger the development of rheumatoid arthritis in people who are already at risk genetically. Over a million adults in the United States…
Corbus Pharmaceuticals has received the Development Award presented by the Cystic Fibrosis Foundation, along with $25 million to support an upcoming study, reports Financial Buzz. Corbus plans to test out…
According to an article from Khon2, locals on Honolulu Island in Hawaii are starting to raise concerns after the children of three firefighters from the Waipahu Fire Station were diagnosed…
According to Yahoo! News UK, cancer survival rates have increased over the passed ten years. However, the progress hasn't been evenly distributed across the board of varying cancers. According to…
Dena Winchester, a sophomore at Rutgers University, faces the struggles that come with her condition by advocating for change, reports New Jersey Jewish News. After she was diagnosed with lipodystrophy…
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