National Organization for Rare Disorders Announces Ten New Grants

In honor of its 30th anniversary, the National Organization for Rare Disorders (NORD) has announced ten new grants as part of its Rare Disease Research Grant Program! NORD is the…

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Baby Makes History as the First Spinal Muscular Atrophy Patient to Receive Gene Therapy Since Its Approval
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Baby Makes History as the First Spinal Muscular Atrophy Patient to Receive Gene Therapy Since Its Approval

According to a story from BioSpace, on June 7th, 2019, Londyn Wright became the first baby in the US to receive Zolgensma, a recently approved gene therapy treatment for the…

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Acute Lymphoblastic Leukemia: Miracles for Millions and the People Who Created Them

  According to a recent article in MedicalXpress, the story begins fifty years ago with the grim statistics that a child with acute lymphoblastic leukemia (ALL) would not survive longer than…

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Drug Shows Potential in Treating Hyperkalemia Associated With End-Stage Kidney Disease
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Drug Shows Potential in Treating Hyperkalemia Associated With End-Stage Kidney Disease

According to a story from BioPortfolio, the biopharmaceutical company AstraZeneca recently announced the release of positive results from a phase 3b clinical trial. This trial was testing the safety and…

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Study Finds Poor Adherence to PDE-5I Drugs Can Have Consequences in Pulmonary Arterial Hypertension
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Study Finds Poor Adherence to PDE-5I Drugs Can Have Consequences in Pulmonary Arterial Hypertension

According to a story from Pulmonary Hypertension News, a recent study has found that lapses in treatment adherence can result in serious side effects for pulmonary arterial hypertension (PAH) patients…

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How do You Find Strength as Amyotrophic Lateral Sclerosis Causes Your Body to Weaken?

According to a story from princetoninfo.com, Sara Cooper was diagnosed last November with amyotrophic lateral sclerosis. Sara has had an active career as an event planner, marketing consultant, and real…

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