XLA: This Father Helped Identify the Disease That Killed His First-Born Son—and Saved His Youngest in the Process
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XLA: This Father Helped Identify the Disease That Killed His First-Born Son—and Saved His Youngest in the Process

According to a story from USA Today, Thanksgiving 2009 was a harrowing time for the Anderson family. About a month earlier, Darrin and Sarah Anderson's oldest son Henry had died…

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First Patient Dosed with Experimental Treatment for Multiple Myeloma in Clinical Trial
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First Patient Dosed with Experimental Treatment for Multiple Myeloma in Clinical Trial

According to a story from Myeloma Research News, the first patient has been dosed with an experimental allogeneic (donor derived) CAR-T cell therapy called UCARTCS1 as part of a phase…

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4-Year-Old With Metachromatic Leukodystrophy Must Seek Out-of-State Treatment
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4-Year-Old With Metachromatic Leukodystrophy Must Seek Out-of-State Treatment

  Finding the correct doctor for treatment can be difficult, especially if one has a rare disease. Because few doctors specialize in rare diseases, they are often spread across the…

Continue Reading 4-Year-Old With Metachromatic Leukodystrophy Must Seek Out-of-State Treatment
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