Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
MASH Rec CARD (13)
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: February 24, 2020

  1. Home>
  2. 2020>
  3. February>
  4. 24

How Living With Hashimoto’s & Lyme Disease Taught Me To Stand Up For Myself — And My Health

  • Post author:Rose Duesterwald
  • Post published:February 24, 2020
  • Post category:Lyme Disease

February 16, 2020 The doctor wasn't listening to me. He didn't care that I was suffering. “I’m so sorry, I thought we were doing the right thing,” my dad said,…

Continue Reading How Living With Hashimoto’s & Lyme Disease Taught Me To Stand Up For Myself — And My Health
Enrollment Continues to Progress for Phase 3 Stargardt Disease Trial
source: pixabay.com

Enrollment Continues to Progress for Phase 3 Stargardt Disease Trial

  • Post author:James Moore
  • Post published:February 24, 2020
  • Post category:Rare Disease/Stargardt Disease

According to a story from Financial Buzz, the ophthalmology company Acucela Inc. has recently announced an update on the progress of its phase 3 clinical trial. This clinical trial is…

Continue Reading Enrollment Continues to Progress for Phase 3 Stargardt Disease Trial
Future is Uncertain for Australian Boy with a Neuromyelitis Optica
source: pixabay.com

Future is Uncertain for Australian Boy with a Neuromyelitis Optica

  • Post author:Patient Worthy Contributor
  • Post published:February 24, 2020
  • Post category:Neuromyelitis Optica/Rare Disease

By Natalie Homan from In The Cloud Copy Theo Thomas of Secret Harbour, Australia, may be a shy, soft-spoken 8-year-old, but he loves racing his motorcycle in his town’s Lightweight…

Continue Reading Future is Uncertain for Australian Boy with a Neuromyelitis Optica
New Developments in Treatment and Awareness of Amyloidosis
source: pixabay.com

New Developments in Treatment and Awareness of Amyloidosis

  • Post author:Kendall Mason
  • Post published:February 24, 2020
  • Post category:Amyloidosis/Hereditary ATTR Amyloidosis

Amyloidosis is a rare disease that has gone without awareness for a long time. This lack of awareness led to slow developments in treatment, issues with obtaining a diagnosis, and…

Continue Reading New Developments in Treatment and Awareness of Amyloidosis
Getting Diagnosed with Vasculitis Changed Everything for a Father and Daughter
source: pixabay.com

Getting Diagnosed with Vasculitis Changed Everything for a Father and Daughter

  • Post author:James Moore
  • Post published:February 24, 2020
  • Post category:Vasculitis

According to a story from stcatherinesstandard.ca, former firefighter Tom Salisbury was 54 years old when he was first diagnosed with a form of vasculitis, a type of rare autoimmune disease.…

Continue Reading Getting Diagnosed with Vasculitis Changed Everything for a Father and Daughter
The Increasing Role of PARP Inhibitors for the Treatment of Ovarian Cancer
source: pixabay.com

The Increasing Role of PARP Inhibitors for the Treatment of Ovarian Cancer

  • Post author:Kendall Mason
  • Post published:February 24, 2020
  • Post category:Ovarian Cancer/Rare Disease

Poly ADP-ribose polymerase (PARP) inhibitors have played an increasing role in the treatment of ovarian cancer. They are being very heavily studied in clinical trials, both for the treatment of…

Continue Reading The Increasing Role of PARP Inhibitors for the Treatment of Ovarian Cancer
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info