ICYMI: First Drug to be Approved for Neurofibromatosis Type 1 and Plexiform Neurofibromas (NF1-PN)
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ICYMI: First Drug to be Approved for Neurofibromatosis Type 1 and Plexiform Neurofibromas (NF1-PN)

  According to a recent announcement by AstraZeneca, the U.S. FDA granted its approval for Koselugo (selumetinib). This is the first drug to be approved for the treatment of children…

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The Impact of COVID-19 on Patients with Thalassemia and Sickle Cell Disease: A Webinar Review
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The Impact of COVID-19 on Patients with Thalassemia and Sickle Cell Disease: A Webinar Review

  As COVID-19 continues to spread across the globe, more and more people are wondering how this virus might affect them. This is especially true for patients with rare diseases,…

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Warrior Princess: Fighting a Rare Disease Under Unprecedented Circumstances, Part Two
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Warrior Princess: Fighting a Rare Disease Under Unprecedented Circumstances, Part Two

Continued From Part One written by Payel Bhattacharya Pharmaceutical science has medications to control the pain. I was initially put on medicine but it mostly didn’t contain the pain. I…

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Exercise Can Reduce Risk of Severe COVID-19 Respiratory Complications, Says UVA Researcher
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Exercise Can Reduce Risk of Severe COVID-19 Respiratory Complications, Says UVA Researcher

  According to a release from the UVA Health System Newsroom, Dr. Zhen Yan, PhD, discovered that exercise can reduce or totally stop severe respiratory symptoms associated with acute respiratory…

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Metabolic Syndrome, Cause of Heart Disease and Diabetes, Linked To LRRK2 Mutations

Certain features of metabolic syndrome may be more prevalent in people with Parkinson’s disease-associated mutations in the gene LRRK2, new research suggests. The research abstract “Metabolic syndrome and genetic Parkinson’s disease, the case…

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New Study Offers Promising Results for Identifying the Cause and Finding Potential Treatments for Ulcerative Colitis 

By Natalie Homan from In the Cloud Copy What Is Ulcerative Colitis?  Ulcerative Colitis is a condition where the colon and rectum become inflamed and develop ulcers. It is a painful…

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Patients with Inflammatory Bowel Disease Have Higher Risk of Developing Bacteremia

According to Medical XPress, hospitalized patients with inflammatory bowel disease are more at risk of developing bacteremia, particularly if they are older in age. Researchers came to this conclusion using…

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