10-year-old Lyla McCarty has always dreamed of owning her own bakery. You see, Lyla has complex regional pain syndrome (CRPS) and often experiences periods of prolonged and intense pain. But…
According to an article posted by Morningstar, IMV Inc. has dosed the first patient in its Phase 1b trial of maveropepimut-S (MVP-S), which will investigate safety in patients with hormone…
Jon Aquino, a thirty-seven-year-old nurse, and his family were on vacation in New Jersey last August when he became seriously ill. Jon was immediately rushed to a Camden, New Jersey…
A new approach to evaluating the value and efficacy of treatment was developed by associate professor Meredith Regan ScD of Harvard’s Medical School and Dana Farber Institute. A recent article…
A new method to differentiate between two gynecologic tumors, malignant epithelial ovarian tumors (MEOTs) and borderline epithelial ovarian tumors (BEOTs), has been created by Chinese scientists from the Suzhou Institute…
CONTENT WARNING: Severe skin wounds and damage Working in rare disease is always hard- It means working in suffering and grief, but even with all our experience, we had to…
According to a recent article, a study shows the risk of getting nasopharyngeal carcinoma (NPC) varies considerably in different ethnic groups among Asian Americans. Nasopharyngeal Carcinoma (NPC) Nasopharyngeal carcinoma…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
