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Daily Archives: December 21, 2021

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Patient Engagement Barriers for aHUS

Patient Engagement Barriers for aHUS

  • Post author:Kendall Mason
  • Post published:December 21, 2021
  • Post category:Atypical hemolytic uremic syndrome

A lack of patient engagement is an issue across many rare diseases, with atypical hemolytic uremic syndrome (aHUS) acting as the perfect example. In fact, aHUS patient organizations are still…

Continue Reading Patient Engagement Barriers for aHUS
Cutaquig FDA Approved for Treatment of Children with Primary Humoral Immunodeficiency

Cutaquig FDA Approved for Treatment of Children with Primary Humoral Immunodeficiency

  • Post author:Alyssa Stevens
  • Post published:December 21, 2021
  • Post category:Primary Immunodeficiencies

According to a recent article from Pharmacy Times, Octapharma’s cutaquig has been approved by the FDA to treat patients who are 2 years of age or older with primary humoral…

Continue Reading Cutaquig FDA Approved for Treatment of Children with Primary Humoral Immunodeficiency
Lyme Disease Bacteria Found in Nebraska’s Ticks
source: pixabay.com

Lyme Disease Bacteria Found in Nebraska’s Ticks

  • Post author:Jessica Lynn
  • Post published:December 21, 2021
  • Post category:Lyme Disease

Look out, Nebraska - there may soon be an uptick (see what we did there?) of Lyme disease cases within your state. Just about two years ago, Borrelia burgdorferi (B. burgdorferi),…

Continue Reading Lyme Disease Bacteria Found in Nebraska’s Ticks
Recovering from Meningococcal Meningitis: A Rare Patient Story, Part One
source: pixabay.com

Recovering from Meningococcal Meningitis: A Rare Patient Story, Part One

  • Post author:Patient Worthy Contributor
  • Post published:December 21, 2021
  • Post category:Bacterial meningitis/meningitis/Meningococcal disease

Written by Lucy Scott The 9th of October 2014 would be a day I would never forget... but in actuality, I don’t remember that day nor the years before. Every…

Continue Reading Recovering from Meningococcal Meningitis: A Rare Patient Story, Part One
When A Survivor’s Compassion Turns to Guilt
source: pixabay.com

When A Survivor’s Compassion Turns to Guilt

  • Post author:Rose Duesterwald
  • Post published:December 21, 2021
  • Post category:Soft Tissue Sarcoma

Geraldine is Senior Vice President of TheGrio’s, known as Black America’s News. Although she never met Virgil Abloh, she followed his career and knew of his many talents. Geraldine says…

Continue Reading When A Survivor’s Compassion Turns to Guilt
CKD Blood Pressure Improves with Chlorthalidone

CKD Blood Pressure Improves with Chlorthalidone

  • Post author:Jessica Lynn
  • Post published:December 21, 2021
  • Post category:Chronic Kidney Disease

In 1960, the FDA approved chlorthalidone for hypertension (high blood pressure). However, doctors were unsure whether this therapy could benefit patients with advanced chronic kidney disease (CKD) who had high…

Continue Reading CKD Blood Pressure Improves with Chlorthalidone
Study: A Longer-Lasting COVID-19 Vaccine
ulleo / Pixabay

Study: A Longer-Lasting COVID-19 Vaccine

  • Post author:Kendall Mason
  • Post published:December 21, 2021
  • Post category:COVID-19

The vaccines for COVID-19 have allowed us to return to normalcy - partially, at least. Now, a UCLA study has discovered that there may be a way to curate a…

Continue Reading Study: A Longer-Lasting COVID-19 Vaccine

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