The Ripple Effect of My Colorectal Cancer Journey: How One Small Moment Can Change Your Life
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The Ripple Effect of My Colorectal Cancer Journey: How One Small Moment Can Change Your Life

Written by Yla Flores Have you ever experienced a seemingly small moment that ended up changing your life forever? Whether it’s turning left instead of right, going out one night…

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Study: Tirzepatide Lowers Risk of Pancreatitis and Diabetic Retinopathy vs GLP-1s
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Study: Tirzepatide Lowers Risk of Pancreatitis and Diabetic Retinopathy vs GLP-1s

According to a story from Healio, analysis of the FDA Adverse Events Reporting System database indicates that tirzepatide has a superior safety profile when compared to GLP-1 inhibitors that have…

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When Might You Consider Genetic Testing for Alzheimer’s Disease?
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When Might You Consider Genetic Testing for Alzheimer’s Disease?

This article was written by and shared with permission from Shannon Wieloch, MS. Shannon is a certified genetic counselor and patient advocate for the Aicardi-Goutiere Syndrome Advocacy Association and founder of Stork Genetics.…

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WHAT THE C@H?!: How This Educational Initiative Supports the Congenital Adrenal Hyperplasia (CAH) Community
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WHAT THE C@H?!: How This Educational Initiative Supports the Congenital Adrenal Hyperplasia (CAH) Community

For over three decades, Neurocrine Biosciences, Inc. has been working to support individuals with neurological, neuroendocrine and neuropsychiatric disorders through the development of breakthrough treatment options. One of the company’s…

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NDA for NF1-PN Treatment Charges Ahead with Priority Review
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NDA for NF1-PN Treatment Charges Ahead with Priority Review

According to a press release from GlobeNewswire, the biopharmaceutical company SpringWorks Therapeutics recently announced that the US Food and Drug Administration (FDA) has granted the company's New Drug Application (NDA)…

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Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS
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Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS

This patient story was contributed by the Marfan Foundation. ### CONTENT WARNING: This patient story focuses on a detailed account of fatal childhood aortic dissection. It is shared to save…

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