Twenty-plus pills a day. Two biologic injections a month, two more every week. That's my baseline just to function like a "normie" human and keep working, and it's the arrangement…
Editor's Note: Patient Worthy is honored to share this story, submitted to us by Richard Poulin III. Late one night, a seemingly ordinary Facebook post changed the course of our…
Editor's Note: Patient Worthy is honored to share this article, originally written by Renzo Luzzatti, President and CEO of US-Rx Care. The White House recently announced intent to impose tariffs…
Editor's Note: Patient Worthy is honored to present this article, originally written by Camille Johnson. People living with chronic illness or long-term treatment plans often find that stress management for…
Editor's Note: Patient Worthy is honored to share this article with you, kindly provided to us by our friends at End Sepsis. To see the article in its original format,…
If you had asked me a few years ago what I thought my biggest health concern would be, lung cancer wouldn't have even crossed my mind. I've never smoked. I've…
Reflections on V122I, Genetic Risk, and the Questions Black Families Are Still Asking Editor's Note: This article was written and submitted to us by Erin Poyant of #hattrnextgen®. "When you…
For more than 20 years, I had a treatment routine that worked. My specialty pharmacy delivered the medications I needed and coordinated trained nurses who came to my home for…
Editor's Note: This article was shared with us by Jo Kaur. To see it in its original format, please click here. Riaan Singh Digeorge, age 6, of New York…
My name is Stephen Savage. I'm happy to say I'm a cancer survivor. I was diagnosed in February, 2019 with a form of adenocarcinoma: esophageal cancer of the lower sphincter.…
Last year, I came down with a severe autoimmune disorder. It came out of nowhere. And it was bad. I was hospitalized three times over the course of a few…
Editor's Note: We are honored to share this story from our friends at CURE SYNGAP. To see this article in its original format, please click here. Porter is one of Jansen’s…
It was 2013, I was 21 years old, studying abroad in Italy, living the semester every college student dreams about. Then I woke up one morning and my body was…
Editor's Note: The following recipe was written and shared with us by our friend Julie, the Cancer Dietitian. I cannot tell you how many people express their amazement and surprise…
Editor's Note: The following patient story was submitted to us by Daniel S.—an animal lover, sports fan, and former IIH patient. When you think about shunts, where do you imagine…
Editor's Note: The following article was originally written by Dr. Linda Bluestein. Linda Bluestein, MD, is a board-certified anesthesiologist and internationally recognized expert in hypermobility disorders, integrative pain medicine, and…
Editor's Note: The following patient story was submitted to us by Christoph Muth, a 52-year-old German man currently residing in Thailand. I am living with a very rare, highly complex,…
Editor's Note: Patient Worthy is honored to share this article from our friends at Elephants & Tea, originally written by Kiki Khan, a leukemia survivor. To see the article in…
Editor's Note: This post was written and submitted to us by Jon Scheinman, and originally shared on LinkedIn. To see the article in its original format, please click here. I…
In my younger years, beginning around the age of 30, I was living fast and careless. I was the party girl, always drinking, never thinking about what it might one…
Editor's Note: This article was shared with us by our friends at the AAMDS International Foundation. To see the article in its original format, please click here. “I would like…
Editor's Note: This is part 2 of a 3-part caregiver story, submitted to us by Joan Foster, who was a caregiver for her husband Charles' Chronic Kidney Disease (CKD). To…
Thoughts occur in the mind, when the electrical circuits in the brain through neurons and synapses and chemicals all function together. Processes of the mind produce ideas, reasoning, creativity, safety…
As reported on Fierce Pharma, Huyabio has reported encouraging Phase 3 results for its investigational oral HDAC inhibitor, HBI-8000, when used alongside Bristol Myers Squibb’s immunotherapy Opdivo (nivolumab) in patients…
I was diagnosed with myasthenia gravis, or MG, in 2021 when I was in my early 20s. My journey began at a friend’s birthday party when I noticed my face…
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