Alisha Stone has a BA in psychology and is dedicated to improving the lives of others living with chronic illnesses.
There's some promising news about a hormone therapy for nonalcoholic steatohepatitis (NASH). Read on, but first, let's put things into context with some practical, real-life background stuff... How was your…
Read a really wonderful, inspiring heartwarming story about two old friends which you can read here that I’d like to share to give you and your loved ones in the…
Remember the last time you had a bad day? You know what I’m talking about—those times when we come home and plop down on the sofa—and devour a huge piece…
After watching a rather “dry” physician, a pulmonologist (I presume) on a video (you can watch it here), I felt like there was more to be had. This goes beyond…
Oh here’s an article that really grabbed my FREAKING attention about a 20-something Chinese woman who is living with narcolepsy. She has chosen not to take medications for her narcolepsy…
Did you know that approximately 30 percent of adult Americans have a somewhat benign liver disorder that could turn into liver failure and lead to an untimely death? Nonalcoholic fatty…
If you or your loved one has cataplexy, I definitely suggest you read this post, written by a young woman who’s living with it. I say “living with it” vs.…
I read a pretty cool short and sweet article that you need to check out, written by a person who is living with narcolepsy. I’m so impressed by how well…
Recently, we've written about the OPEN Act, which supports using previously FDA approved drugs and using them to treat rare diseases. Well, this is kind of like that... kind of. …
I was alarmed and yet inspired by a recent article I read. Narcolepsy affects nearly 200,000 people in the United States, but sadly goes undiagnosed and undertreated. Don’t let this…
I thought I’d had a bad day today, but quickly changed my mind after reading about a part-time teacher, married mother of four kids who was only 37 years old…
Here are some highlights of an inspirational article I'd like to share... Boehringer Ingelheim, a pharmaceutical company specializing in rare pulmonary diseases, headquartered in Germany, is stepping up to the…
I recently lost a family member to idiopathic pulmonary fibrosis (IPF). She’d lived well with IPF for several years and physically well until the last six months. As you might…
Listen up: Scientists in Japan may be onto something big. They’ve discovered there is a significant correlation between the amount of fat vs. muscle that people have and how it…
I read the most AMAZING post—and I mean AMAZING post (I am not kidding! OMG!) written by a woman who has been living with Cushing’s disease for less than 5…
Ohhh, I've got a spark for discussion. I’m verklempt after reading a post from a 30-something woman who is living with idiopathic pulmonary fibrosis (IPF). First, it breaks my heart…
In a previous life, I worked with a number of people living with Parkinson’s disease (PD) to help advocate for them and empower them to fight back to make the…
A startling new study released December 22, 2016 has made some amazing findings about a new “treatment” that will clearly help people who are living with Parkinson’s disease (PD). You…
I have a new hero, an Irishman who’s not only gotten some great press and notoriety, this guy has struck gold in the hearts of the Morquio syndrome community! In…
I’ve been fat before, but when I was back in 2007, I never felt PHAT—as in “pretty hot and tempting.” So when I read the post about a fabulous, young…
In sharp contrast to my other two posts recently about the power of humor in living with Cushing’s disease, my heart goes out to another woman, a mom who’s had…
Lying in bed this spectacularly beautiful fall Sunday morning—with my gently-snoring cat, Thelma, I feel so relaxed gazing out the window, watching ruby red leaves fluttering in the wind. But…
Hold the phone! Hold. Wait. Uhhhh am I reading this right? There is a mom, who seems to have good intentions, a mom who clearly loves her young daughter who…
After watching another YouTube video on fatty liver disease, I’m on a tear, specifically in addressing two types: First: Non-alcoholic fatty liver disease, which is also known as NAFLD and…
Are you a concerned parent or loved one of a child who has Juvenile Idiopathic Arthritis (JIA)? Well, you’ve come to the right place! I read such an uplifting online…
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