Alisha Stone has a BA in psychology and is dedicated to improving the lives of others living with chronic illnesses.
Santa's not the only person making Naughty or Nice lists--and here's how to stay off of at least one of 'em! I gotta admit, I’m new to the Tourette syndrome…
Okay, I’m just baffled. Baffled. I’m trying to process my feelings as I’m writing this article because, well, that’s what women have to do sometimes. So, I just posted two…
OMG. It’s a Friday afternoon and as I’m sitting here, my heart is breaking for people with neuromyelitis optica, a very rare disease that use to be considered a rare…
Most everyone these days has heard about multiple sclerosis (MS) but aren’t so familiar with neuromyelitis optica (NMO), which is also called Devic’s disease or Devic’s syndrome. What’s so important…
Let's take a stroll down memory lane to gain some perspective on Tourette’s syndrome… Years ago, when the famed comedian and director, Larry David, produced an episode of Curb Your Enthusiasm, which…
I dig those peeps at WorryWiseKids.org who are helping to raise the bar to better understand Tourette’s syndrome (TS). Their mission is to lessen the suffering that children with Tourette's…
I read a report recently from the New England Journal of Medicine about a clinical trial and thought I’d share it with you because it’s about Fabry disease, a genetic disease…
My heart breaks for children who are suffering from a chronic or rare disease such as refractory epilepsy or Glut1 disease. My heart breaks as well for their parents, siblings, and grandparents…
Shocker! Did you know it’s possible to acquire hemophilia? There’s a professor who I’m obsessed with from Texas—that would be “obsessed” as in a healthy obsession! And here’s why: He…
In Himanshu Sharma’s article posted on Onlymyhealth.com back in 2014, it appears that the basics are there. But I’d like to offer my own take since I happen to have…
I feel like shouting from the rooftop after reading about this 7-year-old girl named Yasmin. After a long hospitalization that spanned several months, she finally got released because her body…
I’m impressed of with the direction of the Fabry Support & Information Group (FSIG) and the offerings they have. In August 2016, they had a Fabry Family Get Together at…
Australian scientists have developed a new blood test that has potential to identify Parkinson’s disease (PD) (early) in people, which is enabling doctors to better treat their patients who have…
Miracles never cease to amaze me. And quite frankly, it’s been a long time since I’ve been convinced that one actually has happened—although in theory, I welcome miracles every day!…
If you are trying to dive into aplastic anemia, here are some interesting facts from the Seattle Children’s Hospital that you should definitely check out. First, for anyone who’s been…
Amidst the hype leading up to the first head-to-head American Presidential debate with Trump vs. Clinton, the topic of Venezuela’s drug shortage of aplastic anemia drugs wasn't mentioned. But having…
Are you a guy who'd rather suck lemons than talk about your Sjogren's syndrome? Men who are living with Sjogren’s syndrome are sometimes forgotten because the disease mostly affects women…
I am completely BAFFLED About Addison’s disease! Are you?! You Should be! It’s Monday night, and I’m sitting—rather, lounging on the sofa, feeling baffled after reading a post from a…
In my humble opinion, the Urology Care Foundation has set the standard when it comes to providing factual information about Cushing’s syndrome (CS). And if you or your loved one…
Have you experienced unexplained, sudden weight gain? Or, despite the number of times you’ve faithfully stuck to a diet, have you failed to lose weight? If either or both of these…
Dealing with dystonia? Well, here’s an idea that’s tracking well with many neurologists and patients: Botox. Yeah, Botox—for dystonia! Who knew that a little old bovine injection could benefit people…
After talking on the phone with some of my family members, I felt a range of emotions from anger and frustration to guilt and sadness. It breaks my heart because…
I’ve gotta hand it to this German gal named Karina, who posted an article about her journey living with Ehlers-Danlos syndrome (EDS), a chronic illness that affects connective tissues in areas…
I’m continuing on my long flight to Brazil, AKA, “Zikaland”—in my opinion, (BTW, I do LOVE Brazilians, I just HATE what’s happening). I’m wondering if Brazil is one of the…
Listen up. This is important for the aplastic anemia community—especially for children who’ve been diagnosed with this serious condition. The Dana-Farber Children’s Cancer and Blood Disorders Hospital in Boston, MA…
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