TNF Inhibitors Increase Risk of Central Nervous System Inflammation for Patients with Autoimmune Disorders
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TNF Inhibitors Increase Risk of Central Nervous System Inflammation for Patients with Autoimmune Disorders

According to MedScape, tumor necrosis factor (TNF) inhibitors present severe issues for patients with autoimmune disorders. In particular, patients exposed to TNF inhibitors may experience inflammation throughout their central nervous…

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Clinical Trial Suggests Soliris Could be an Effective Treatment for Neuromyelitis Optica Spectrum Disorders
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Clinical Trial Suggests Soliris Could be an Effective Treatment for Neuromyelitis Optica Spectrum Disorders

According to a story from BusinessWire, the drug developer Alexion Pharmaceuticals, Inc., recently announced positive results for its Phase 3 trial testing Soliris as a therapy for neuromyelitis optica spectrum…

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The FDA has Granted Orphan Drug Status to Q-Cells® for the Treatment of Transverse Myelitis
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The FDA has Granted Orphan Drug Status to Q-Cells® for the Treatment of Transverse Myelitis

The United States Food and Drug Administration has awarded Orphan Drug Designation to Q-Cells®, a product being developed by Q Therapeutics, for the treatment of transverse myelitis. For more detailed…

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ESPN Host Opens Up About Her Frightening Childhood Experience With Transverse Myelitis
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ESPN Host Opens Up About Her Frightening Childhood Experience With Transverse Myelitis

According to a story from tdn.com, Victoria Arlen recently discussed her past experiences with transverse myelitis and acute disseminated encephalomyelitis, which left her in a coma-like state for years. You…

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Did You Know Transverse Myelitis Can Be Identified as Manifestation of a Celiac Diagnosis?
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Did You Know Transverse Myelitis Can Be Identified as Manifestation of a Celiac Diagnosis?

Oh the joys of a 17-month-old toddler… I remember some of the typical behaviors of those days—the throwing heaving of everything and anything, the opening of the fridge a million…

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Transverse Myelitis: A Tricky Disease With No Rhyme or Reason
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Transverse Myelitis: A Tricky Disease With No Rhyme or Reason

The spinal cord is a major part of the central nervous system, and when it becomes inflamed, transverse myelitis results. It often causes a band-like sensation across the trunk of…

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The 2017 Rare Neuro-Immune Disorders Symposium is Quickly Approaching This October!
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The 2017 Rare Neuro-Immune Disorders Symposium is Quickly Approaching This October!

On October 20th and 21st, the 2017 Rare Neuro-Immune Disorders Symposium (RNDS) will be held in Columbus, Ohio. The event is meant to bring together patients, families, researchers, and all…

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This Girl with Transverse Myelitis Finally Has a Doll that Matches Her
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This Girl with Transverse Myelitis Finally Has a Doll that Matches Her

Hannah Hawkins has an autoimmune disorder called transverse myelitis. She has to go to physical therapy multiple times each week to help her walk. Using a crutch is the norm…

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Editor’s Choice: Donating, Battling and Healing in the Face of Rare Disease

Welcome to Friday Patient Worthians! This week we have a PW Contribution on one woman's battle with Stiff Person's Syndrome. We also have a piece on using fear to serve you in…

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Transverse Myelitis Diagnosed a Month After Hospital Visit
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Transverse Myelitis Diagnosed a Month After Hospital Visit

Kyrus Rogers a former security guard was supposedly misdiagnosed when an emergency room physician apparently failed to run diagnostics for transverse myelitis (TM). Rogers, once a healthy, athletic 30-something, is…

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Transverse Myelitis Nearly Paralyzed This Teen… But He Fought Back
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Transverse Myelitis Nearly Paralyzed This Teen… But He Fought Back

A short list of abilities that we take for granted: going shopping playing basketball sitting up in a chair walking to the restroom when the urge strikes reaching out and grabbing…

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Fishing Tournament to Raise Money for Transverse Myelitis on May 6, 2017 in Alabama
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Fishing Tournament to Raise Money for Transverse Myelitis on May 6, 2017 in Alabama

What is the perfect way to spend a Saturday? Well, if you are a fishing enthusiast and enjoy raising money for a cause I have the perfect event for you.…

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