Listen up. This is important for the aplastic anemia community—especially for children who’ve been diagnosed with this serious condition. The Dana-Farber Children’s Cancer and Blood Disorders Hospital in Boston, MA…
Continue ReadingThe Best Hospital for Kids with Aplastic Anemia Will Shock You
I wonder if most families have a backup plan—especially when it comes to a family crisis? I’ve been reading about aplastic anemia this summer and am absolutely baffled about what…
Continue ReadingDo You Know What to do When Aplastic Anemia Strikes?
Here’s some down and dirty information about aplastic anemia, an autoimmune disease that results when the body cannot produce life-sustaining bone marrow, and doesn't create enough red and white blood cells and platelets.…
Suspect You May Have Cushing’s Disease? Read On Now! If you suspect that you might have Cushing’s disease because you have some of the following symptoms, you DEFINITELY need to…
Continue ReadingSuspect You Have Cushing’s Disease? 5 Critical Things You Need to Know
During one of those “dog days of summer,” I was searching around for some inspiration; I’d been feeling blue because a friend of mine, who is in her 50s and…
Continue ReadingStories of Courage Like This One Should be Mainstream
I recently read an article about a 22-year-old man from Utah who’d just returned from a missionary service in Brazil and was diagnosed with aplastic anemia. This is so sad…
Continue ReadingAplastic Anemia and Zika Virus: An Important Story That Will Shake Your Core
I read an interesting article posted on Living the Diagnosis by Vicky Warren. I’ve got to applaud her for sheading more light on Ehlers-Danlos syndrome (EDS), a genetic rare disease/syndrome.…
Continue Reading12 Things This Woman Wants You to Know About Ehlers-Danlos Syndrome
I recently read an article about a little boy who’d been diagnosed with aplastic anemia, a mysterious and very serious illness that can strike adults as well as children. It’s…
Continue ReadingIn the Midst of Chaos, These Parents are Making it Work
ATTENTION all of you go-getters and Sherlock Holmes peeps! I’m calling on my investigative peeps for some support! Here’s a challenge for ya to help the Cushing’s disease (and Cushing’s…
You may or may not know that Cushing’s disease can be challenging to diagnose because no two cases are exactly the same. People can experience symptoms or even a combination…
Continue ReadingHow These 12 Symptoms May Increase Your Risk of Cushing’s Disease
Midnight in the Garden of Good and Evil with Addison’s disease Instills Compassion 12:00 a.m. I’m not kidding when I say it’s midnight, “in the garden of good and evil.”…
Continue ReadingAddison’s Disease: True Midnight in the Garden of Good and Evil?
I’ve written several articles recently on Cushing’s disease and the difference between it and Cushing’s syndrome—which I felt compelled to do because, I admit, in my own naivety, perhaps like…
Continue ReadingBottom Line: How to Learn Fundamentals About Cushing’s Disease
Dr. Josh Axe, who is a chiropractor, clinical nutritionist, and a doctor of natural medicine, is the founder of Exodus Health Center. You can read more about him and his…
Great news (I hope) for people who suspect they may have a medical condition such as Cushing’s disease and are concerned about their health. A clinical trial made public in…
Yowzaaa! You don’t want to miss the article by Jeannette Y. Wicks, RPh, MBA, FASCP about Cushing’s disease (CD). Cushing's is a rare disease that’s caused by high levels of…
Continue ReadingCushing’s Disease News Guaranteed to Get You Excited
I watched a very cool video that follows one woman’s quest to finally get the answers she needs. Ultimately, it led to her diagnosis and subsequent treatment for Cushing’s disease.…
Continue ReadingThe Truth About Obesity Revealed in Cushing Disease
Kudos to the Cystic Fibrosis (CF) Foundation for building a mighty network of care centers for CF patients all across this great nation of ours! The Foundation has set forth…
We all need to cheer and whoop it up for these two brave women who suffer from Ehler-Danlos! Brooklyn Mills and Erika Crawford, who are living with the condition, decided…
Continue ReadingEhler-Danlos: What’s NOT to LOVE About These Ontario Bureaucrats?
I recently posted an article on aplastic anemia in response to another post that I’d read. I felt compelled to mention that a dear friend of mine was diagnosed with…
I applaud the American Association of Kidney Patients for their efforts to raise awareness about a condition called Fabry disease. A rather rare genetic disease, Fabry disease seems to affect…
Continue ReadingFabry Disease: How to Take the Bite Out of Ignorance!
The Sentinel-Record publication did a feature story in July 2016 on a young boy, Seth McDaniel, who lives with his family in Tennessee. Just 11 years old, Seth is living…
Every now and then, we all have bad days. But for a child living with a chronic illness like hemophilia—it’s just sooo unfair. I read an inspiring article written by a married…
Continue ReadingWhy This Mom’s Hemophilia Advice Will Inspire You
About two months ago, I bucked up and started recycling. (No this is NOT clickbait.) Now let me first explain that for years as a “responsible adult,” I did my…
Continue ReadingAre You Willing to Try Cord Blood to Cure Your Rare Disease?
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