James grew up in Switzerland, in a little town on a little lake among the foothills of the Alps. His very English first name is owed to his Australian mother. During university, James worked as a freelance journalist covering local news in the little country's capital. Once he completed his studies in political science and media, James moved to Sydney where he joined a media monitoring company. He remained in the media monitoring industry even after his return to Switzerland. Eventually, love brought James to America, where he joined the Patient Worthy editorial team.
Last year, the International Rare Diseases Research Consortium (IRDiRC) has established a task force with the objective of promoting Patient-Centered Outcome Measures in the area of rare diseases. What it means is this: The conversation…
Postural Orthostatic Tachycardia Syndrome (POTS) is definitely not an easy disease to live with. You know, the heart rate and all. Oh and those pointless discussions if it's a disease…
2016 Rare Disease Week on Capitol Hill. Amid all the medical experts, pharmaceutical executives, patients and patient advocates, there's a boy of 10. He sits quietly during the long hours,…
Henderson, NV, January 14, 2016 – The life science trade publication PM360 today announced that Patient Worthy™ won Gold in the category “Consumer Website” at the annual Pharma Choice Awards.…
Can you believe it? Patient Worthy has made it to the big times by winning an award for being the best patient-centric consumer website. We're stoked! But here's what really counts:…
[mlw_quizmaster quiz=1] Share this quiz with people you know who might know a thing or two about CAPS.
If Frank Sinatra had CAPS, the lyrics to "I've Got You Under My Skin" might go like this: I've got you under my skin. I've got you deep in the…
Let's take a trip back in time to the year 2001: A new president is sworn into office; the Global War on Terror begins; and a discovery is made on…
If you know the '90's with some clue about pop culture, the start of this headline means something to you. But "FCAS"? Maybe not... At the close of the 90's,…
When I see "Marvel" and a picture like the one below... ...I see the makings of a superhero! "A team of researchers at Trinity College Dublin has unearthed what they…
When Dystonia has got you down, just ride on. The UK site, DorsetEcho, reports that's Andrew Beale’s approach. Beale will cycle 33 miles through the streets of the United Kingdom…
Even when your LDL cholesterol is shooting through the roof, it can still be tricky to want (and choose!) the “healthy” thing to eat. But we’ve made it easy. These…
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