During this time of COVID-19, many people have some general information about COvID-19 including the knowledge that individuals over 65 years of age are at higher risk of contracting…
A person with diabetes is not able to properly make or use insulin well. Advancements in science are now seriously looking at updating and perfecting ways to help people…
Cystic fibrosis is caused by a mutation in the gene CFTR. This gene involves a protein that affects the chloride on cells; without this chloride the surface of the…
Mother of two, Mina Manchester, has been navigating raising two children with an immunocompromising disorder for four years. It's this unique experience that makes her feel more prepared and…
A recent study has found that undergoing chemotherapy after having surgery for a rare kidney cancer reduces the chance of cancer relapse by 50%. The recent study was published…
"When women come together to demand change, change happens." These are Dr. Svati Shah's words at the Miss America 2020 pageant. She encouraged the watching audience that although cardiovascular…
Shelley Simmonds recently attended the Festival of Genomics, the largest genomics event in the United Kingdom that is quickly growing into the biggest event in the world. It involves…
Clinical trials are an opportunity for patients to try new treatments and medicines that offer the potential to improve or extend their lives. The number of clinical trials have…
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The gene therapy Zolgensma recently won approval last summer in 2019 to be used for infants who have spinal muscular atrophy. The company AveXis, the makers of the Zolgensma gene…
Steffanie Strathdee and her husband Tom Patterson are both scientists who work at the University of California. On an innocent trip to Egypt were they spent a romantic night…
A family is grieving for their daughter and taking it one day at a time in the face of a terminal diagnosis. Kelly and Andrew Mills became pregnant with…
In a recent podcast called Functional Medicine Research, Dr. Scott Antoine was interviewed by the podcast hosts about PANDAS. Dr. Antoine is an osteopathic physician who uses a "fully…
This past week Justin Bieber publicized some surprising news amidst some fans commenting that he looked like a “drug addict.” Bieber, 25, recently posted on his Instagram that he…
Medical science made some great breakthroughs in 2019 and the worldnewspulse.com shares just a few of the most impressive captured moments for science and real life patients. Here are three…
I have been writing for this website for a little over 2 years. Neatly collecting, reading, and reporting on stories of people with rare conditions and disabilities. Little did I…
Hogan Teem was a healthy seventeen year old. He had a girlfriend and he spent his summers mowing lawns in his North Carolina hometown. Hogan played football, baseball, and…
When Frankie Avila first got his lung transplant, he was told that, like most organs that are transplanted, his lungs only have a certain amount of time before they…
The drugs for current inflammatory bowel disease (IBD) patients only help around 50% of patients. And some who do find relief find it short lived as remissions often occur.…
With advocacy organizations gaining traction, sometimes patients with rare diseases may have a handful of options to choose from. Some patients may be quick to join patient advocacy groups…
Although even a regular video of twin baby girls snuggling can be engaging and cute, there are two twin girls in the UK whose bond will warn your heart.…
Thirty-five percent of all Americans and almost 25% of the entire world population may be unknowingly suffering from a "silent killer." Nonalcoholic fatty liver disease or NAFLD is occurs…
There is a little boy in South Africa who is the only one in the country to be reported to have the ultra-rare neurodevelopmental disorder called alternating hemiplegia of…
When Amber Freed and her husband Mark resorted to an in-vitro fertilization (IVF) baby they were overjoyed when they found out they were pregnant and were welcoming two new…
Usually when people think of a seizure disorder, they think of something called tonic-clonic seizures or episodes where a person loses consciousness, has muscle stiffness, spasms, and jerky movements.…
Lucy is now ten years old and stable, living her life as close to a normal ten-year old as possible. However, she was born with a super rare disease…
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