Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
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Compassion Corner: A Grieving Mother Laments a Lack of Compassion by Nurses When Her Baby Died
Research by three doctors provided a basis for tyrosine kinase inhibitors (TKI) and offered advancements in treatment for renal cell carcinoma (RCC) patients. Two such TKIs, sunitinib and sorafenib, remain…
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Doctors Receive Nobel Prize for Development in Renal Cell Carcinoma Treatment
Positive results were announced today by Anavex Life Sciences, which is based in New York, for its Phase 3 clinical trial of Anavex 2-73. Participants in the trial were female…
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Anavex Announces Significant Results from Phase III Rett Syndrome Trial
Researchers are aware that Black cancer patients experience worse outcomes than white cancer patients due to the differences in access to health care. According to a report in Cancer Network,…
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Studies of Head and Neck Cancer Show That Black Patients Have Worse Overall Survival Than Other People of Color
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Recent clinical trials have proven that treatment for relapsed ovarian cancer is not a standard “one size fits all." After a relapse, areas where tumors spread and grow in the…
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Results of Three Clinical Trials Investigating Secondary Surgery For Recurrent Ovarian Cancer
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Targeted Oncology recently featured a discussion by Dr. Jennifer Brown, director of Dana Farber’s Chronic Lymphocytic Leukemia Center, on the interim results from the SEQUOIA Phase 3 trial. The trial…
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SEQUOIA Trial Results Show Remarkable Response Rate in High-Risk CLL Subgroup
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It is common practice to treat multiple myeloma patients with a stem cell transplant. In the GENESIS trial, the stem cells were autologous (from the patient’s own peripheral blood or bone…
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GENESIS Trial: Motixafortide And G-SCF Prepared Multiple Myeloma Patients for Transplant
For the last seven years, the Global Genes Rare Compassion Program has been providing medical students with an opportunity to bond with patients and families who have been diagnosed with…
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A Unique Organization Dedicated to Rare Diseases
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U.S. News carried an article reporting that in a recent study, researchers have identified minute amounts of cancer (organoids) in fallopian tube tissue. The significance of the discovery is that…
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New Study May Provide Lifesaving Detection For Women With Ovarian Cancer
Professor Miranda Orr of Winston Salem’s School of Medicine in North Carolina leads a team of investigators who have detected senescent cells in patients with Alzheimer’s disease. These cells, found…
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A Potential New Target for Alzheimer’s Called Zombie Cells
The World Health Organization (the WHO) announced World Leprosy Day which this year will be celebrated on January 30th. The theme of the celebration is “United for Dignity.” It…
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January 30th is World Leprosy Day: Let Us Be United for Dignity
Julia Lefelar, a resident of Gaithersburg, MD, was telling a friend about her years of seeing different doctors trying to find the cause of her illness. After a while, her…
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After Being Examined By Doctors for 17 Years, Julia Finally Received an Accurate MOG Diagnosis
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Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…
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Compassion Corner: A Patient Almost Died Because of a Doctor’s Lack of Understanding and Compassion
The Critical Path Institute (C-Path), formed in 2005, is a nonprofit, independent (public/private) partnership. The Institute evolved from the FDA’s 2004 White Paper known as the Critical Path Report and…
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The Critical Path Institute and the FDA
Early detection is the key to treating so many types of cancer. Autoimmune hepatitis (AIH), chronic inflammation of the liver, is brought about by an immune system disorder. AIH must…
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New Antibody Test for Autoimmune Hepatitis
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An article in PubMed dated October 8, 2021 outlines immune therapies treating myelodysplastic syndrome (MDS) and acute myeloid leukemia (AML) patients. Both cancers are hematologic malignancies that begin in the…
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Recent Advances in Acute Myeloid Leukemia and Myelodysplastic Syndromes
BeyondSpring Pharmaceuticals has issued a press release announcing that the FDA presented the company with a complete response letter pertaining to its drug plinabulin and granulocyte colony-stimulating factor (G-CSF). The…
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The Long Road to FDA Approval of Plinabulin and G-CSF to Prevent Chemotherapy Induced Neutropenia
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This week the Guardian reported that a pig’s heart, which was genetically modified, had been transplanted into a patient by doctors who were trying to save his life. The patient was…
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University of Maryland Doctors Transplant a Modified Pig’s Heart In a Human Patient
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Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
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Compassion Corner: Doing What is Best For the Patient May Override a Doctor’s Compassion
Biogen Inc. recently announced data that included extended results from its earlier Phase 3b NOVA study on the administration of natalizumab and the evaluation of the drugs Tysabri® and Vumerity. …
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Biogen Announces New Data From Its Portfolio of Treatments for Multiple Sclerosis (MS)
Diagnosing amyloidosis (abnormal protein in tissue) is a complex process. Over eighty percent of amyloidosis patients are undiagnosed. The disease takes hold after the blood plasma cells in the bone…
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Attralus is Developing a New Treatment for Systemic Amyloidosis
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Nonalcoholic steatohepatitis is a liver disease, causing fat to build up in the liver. The resulting inflammation may lead to liver cancer or cirrhosis (scarring) and possible liver failure. As…
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Korean Group’s Successful Experiment to Treat Nonalcoholic Steatohepatitis
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Many people living in rural areas of the U.S. must drive a long distance to receive their medical treatments. According to Yahoo News, twenty-nine-year-old Leah Stavenhagen, now living and…
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Diagnosed with ALS at Age 29, Leah Advocates to Increase Funding for Research
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The recent FDA approval of Vyvgart (efgartigimod) for generalized myasthenia gravis (gMG) marks the first drug approval for Argenx. Vyvgart is designed specifically for adults who test positive for…
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ICYMI: First FDA Approval for Generalized Myasthenia Gravis
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WKBW Buffalo recently interviewed ALS patients who are advocating for a bill that would grant access to clinical trial drugs during Phase III and before they go through the…
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ALS Patients Ask Congress to Pass a Bill Allowing Access to Unapproved Drugs