Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.

    Are Physicians Holding On to an Outdated Belief About Chronic Fatigue Syndrome?

    According to a recent article in The Faculty Lounge, the opinion of its co-authors is that the long-held belief about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is seriously outdated. ME/CFS is…

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    Another Step Forward in Alzheimer’s: AI Can Now Predict Its Possible Onset With 99% Accuracy
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    Another Step Forward in Alzheimer’s: AI Can Now Predict Its Possible Onset With 99% Accuracy

    According to a recent article in Science Daily, the WHO lists Alzheimer’s disease as the cause of dementia in approximately seventy percent of cases worldwide or a total of twenty-four…

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    Patients and Families are Currently Relying on Community Funding for Rare Diseases

    An article recently appeared in the AAMC News celebrating the creation of The Children’s National Rare Disease Institute (CNRDI). The article described the long road patients with rare diseases must…

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    Singapore: 29,000 Donors Responded to a Plea By Devdan’s Parents For a One Time Gene Therapy Treatment That Costs $2.8 Million
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    Singapore: 29,000 Donors Responded to a Plea By Devdan’s Parents For a One Time Gene Therapy Treatment That Costs $2.8 Million

    According to YAHOO News, twenty-two-month-old Devdan has a rare disease called type 2 spinal muscular atrophy (SMA2) which affects nerve cells that control muscles. If left untreated progressive muscle weakness…

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    FDA Halted Phase 3 Trial for Cerebral Adrenoleukodystrophy Due to Participant Developing MDS
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    FDA Halted Phase 3 Trial for Cerebral Adrenoleukodystrophy Due to Participant Developing MDS

          Science Magazine recently joined other news sources in reporting that Bluebird Bio’s Phase 3 clinical trial investigating a treatment for a neurological disease was put on hold by…

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    Thoracic Outlet Syndrome: A Disorder Caused by Repetitive Injuries From Sports or Job-Related Activities
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    Thoracic Outlet Syndrome: A Disorder Caused by Repetitive Injuries From Sports or Job-Related Activities

      As recently presented in Rocketfacts. The thoracic outlet is a ring formed by ribs located immediately below the collarbone. Thoracic outlet syndrome (TOS) occurs when nerves or blood vessels…

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    A Study of Intravenous Immunoglobulin Used to Treat Multiple System Atrophy
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    A Study of Intravenous Immunoglobulin Used to Treat Multiple System Atrophy

      A study found on Medscape confirms that the human immune system and the human brain are the most complicated in our biological systems. The two systems are responsible for…

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    CRISPR: It Has Only Just Begun
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    CRISPR: It Has Only Just Begun

      Over ten years ago two Nobel-Prize-winning biologists, Emmanuelle Charpentier and Jennifer Doudna, discovered a technology called CRISPR (clustered regularly interspaced short palindromic repeats). Bacteria contain genetic sequences repeated throughout…

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    High Blood Pressure is Linked to Parkinson’s Disease in China’s Largest Ethnic Group
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    High Blood Pressure is Linked to Parkinson’s Disease in China’s Largest Ethnic Group

      A recent article in Parkinson’s News Today announced that a new study indicates that high blood pressure has been associated with Parkinson’s disease in Singapore’s Han population. This is…

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    Scientists Discover That a Blood Pressure Medication Can Increase Immune-Boosting Cells
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    Scientists Discover That a Blood Pressure Medication Can Increase Immune-Boosting Cells

      According to a recent article in Genetic Engineering News, findings by scientists at the University of Boston’s School of Medicine and Massachusetts General Hospital (MGH) have uncovered two plausible…

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    The Weather Can Change in an Hour, But a Terminal Cancer Diagnosis Changes Your Life In Minutes

    The symptoms of terminal pancreatic cancer are subtle. The disease is usually not diagnosed until it has substantially progressed, leaving a dismal five-year overall survival of five to ten percent.…

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