Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
Today’s report on compassion describes it as the resolve to serve others. This article, published by the Schwartz Healthcare Center in Cambridge, Massachusetts, features Victor Furtado, Security Director at NewBridge…
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Compassion Comes in Many Different Forms and Unexpected Settings
According to a recent article in The Faculty Lounge, the opinion of its co-authors is that the long-held belief about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is seriously outdated. ME/CFS is…
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Are Physicians Holding On to an Outdated Belief About Chronic Fatigue Syndrome?
Disruption in clinical trial procedures can be added to the list of changes that have occurred since the start of the pandemic in 2020. The clinical trial sites had always…
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Improving Clinical Trials For Patient Convenience and Diversity
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According to a recent article in Science Daily, the WHO lists Alzheimer’s disease as the cause of dementia in approximately seventy percent of cases worldwide or a total of twenty-four…
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Another Step Forward in Alzheimer’s: AI Can Now Predict Its Possible Onset With 99% Accuracy
An article recently appeared in the AAMC News celebrating the creation of The Children’s National Rare Disease Institute (CNRDI). The article described the long road patients with rare diseases must…
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Patients and Families are Currently Relying on Community Funding for Rare Diseases
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According to YAHOO News, twenty-two-month-old Devdan has a rare disease called type 2 spinal muscular atrophy (SMA2) which affects nerve cells that control muscles. If left untreated progressive muscle weakness…
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Singapore: 29,000 Donors Responded to a Plea By Devdan’s Parents For a One Time Gene Therapy Treatment That Costs $2.8 Million
Jordana Rothschild, M.D. recently contributed an article to KevinMD discussing the perception that patients have about their doctors. Dr. Rothschild believes that the system we have created gives people the…
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A Doctor Writes a Prescription to Regain Her Patients’ Trust
The article appeared on August 17th in the print issue of the National Academy of Sciences. The study offers an in-depth understanding of the underappreciated function of brain cholesterol. A…
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Is Brain Cholesterol Associated With Alzheimer’s?
An article by Sandra Boodman of the Washington Post recently appeared in the Philadelphia Inquirer describing the long journey to an accurate diagnosis for sixty-nine-year-old novelist Cai Emmons. Cai had…
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A Novelist Was Determined to Find the Answer to Her Own Mysterious Disease
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Science Magazine recently joined other news sources in reporting that Bluebird Bio’s Phase 3 clinical trial investigating a treatment for a neurological disease was put on hold by…
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FDA Halted Phase 3 Trial for Cerebral Adrenoleukodystrophy Due to Participant Developing MDS
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As recently presented in Rocketfacts. The thoracic outlet is a ring formed by ribs located immediately below the collarbone. Thoracic outlet syndrome (TOS) occurs when nerves or blood vessels…
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Thoracic Outlet Syndrome: A Disorder Caused by Repetitive Injuries From Sports or Job-Related Activities
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
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Compassion Corner: Compassion versus Depersonalization in Healthcare
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A recent article in Genetic Engineering and Biology News describes a study conducted by Gladstone Institute researchers that brings new insights to the role of genes in connection with…
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PINK1 and Parkin Genes Associated with Parkinson’s Disease
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When Caren was eighteen years old her parents were, in fact, given two options. If they were unwilling to consent to a lobotomy, Caren would remain in the dark ward…
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In the 1960s a Lobotomy Was the Only Option for Caren
Lisa Stockmann Mauriello began her petition to Biogen almost one year ago. In her letter to the developers, Biogen and Ionis Pharmaceuticals, Lisa explained that she has an inherited form…
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Lisa Received Her Long-Awaited ALS Treatment, but Is It Too Late?
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A study found on Medscape confirms that the human immune system and the human brain are the most complicated in our biological systems. The two systems are responsible for…
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A Study of Intravenous Immunoglobulin Used to Treat Multiple System Atrophy
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Over ten years ago two Nobel-Prize-winning biologists, Emmanuelle Charpentier and Jennifer Doudna, discovered a technology called CRISPR (clustered regularly interspaced short palindromic repeats). Bacteria contain genetic sequences repeated throughout…
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CRISPR: It Has Only Just Begun
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According to an article published in EuroNews, the National Cancer Institute has announced that MIT researchers have developed a device that can locate cancer cells during urine tests. The device…
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Nanoparticle Diagnostics: One Small Step for Researchers and One Giant Leap Against Cancer
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Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…
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Compassion Corner: The Effect of Masking and Distancing on Doctor-Patient Relationship
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A recent article in Parkinson’s News Today announced that a new study indicates that high blood pressure has been associated with Parkinson’s disease in Singapore’s Han population. This is…
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High Blood Pressure is Linked to Parkinson’s Disease in China’s Largest Ethnic Group
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To the vaccinated, it may feel like the COVID-19 pandemic is finally over, but a convergence of the Delta variant, rising long COVID cases, a higher number of breakthrough…
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Long COVID Should Be Considered When Easing Pandemic Restrictions
As reported recently in Medscape, forty-eight patients with myotonic dystrophy type 1 (DM1), were identified by way of the DM-Scope registry, which is the largest collection of data for the DM population. The…
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Metformin May Improve Mobility in Myotonic Dystrophy Type 1 Patients
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Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
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Compassion Corner: The Challenges and Barriers Are Universal
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According to a recent article in Genetic Engineering News, findings by scientists at the University of Boston’s School of Medicine and Massachusetts General Hospital (MGH) have uncovered two plausible…
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Scientists Discover That a Blood Pressure Medication Can Increase Immune-Boosting Cells
The symptoms of terminal pancreatic cancer are subtle. The disease is usually not diagnosed until it has substantially progressed, leaving a dismal five-year overall survival of five to ten percent.…
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The Weather Can Change in an Hour, But a Terminal Cancer Diagnosis Changes Your Life In Minutes