Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
source: pixabay.com
According to YAHOO News, twenty-two-month-old Devdan has a rare disease called type 2 spinal muscular atrophy (SMA2) which affects nerve cells that control muscles. If left untreated progressive muscle weakness…
Continue Reading
Singapore: 29,000 Donors Responded to a Plea By Devdan’s Parents For a One Time Gene Therapy Treatment That Costs $2.8 Million
Jordana Rothschild, M.D. recently contributed an article to KevinMD discussing the perception that patients have about their doctors. Dr. Rothschild believes that the system we have created gives people the…
Continue Reading
A Doctor Writes a Prescription to Regain Her Patients’ Trust
The article appeared on August 17th in the print issue of the National Academy of Sciences. The study offers an in-depth understanding of the underappreciated function of brain cholesterol. A…
Continue Reading
Is Brain Cholesterol Associated With Alzheimer’s?
An article by Sandra Boodman of the Washington Post recently appeared in the Philadelphia Inquirer describing the long journey to an accurate diagnosis for sixty-nine-year-old novelist Cai Emmons. Cai had…
Continue Reading
A Novelist Was Determined to Find the Answer to Her Own Mysterious Disease
source: pixabay.com
Science Magazine recently joined other news sources in reporting that Bluebird Bio’s Phase 3 clinical trial investigating a treatment for a neurological disease was put on hold by…
Continue Reading
FDA Halted Phase 3 Trial for Cerebral Adrenoleukodystrophy Due to Participant Developing MDS
source: pixabay.com
As recently presented in Rocketfacts. The thoracic outlet is a ring formed by ribs located immediately below the collarbone. Thoracic outlet syndrome (TOS) occurs when nerves or blood vessels…
Continue Reading
Thoracic Outlet Syndrome: A Disorder Caused by Repetitive Injuries From Sports or Job-Related Activities
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
Continue Reading
Compassion Corner: Compassion versus Depersonalization in Healthcare
source: pixabay.com
A recent article in Genetic Engineering and Biology News describes a study conducted by Gladstone Institute researchers that brings new insights to the role of genes in connection with…
Continue Reading
PINK1 and Parkin Genes Associated with Parkinson’s Disease
source: pixabay.com
When Caren was eighteen years old her parents were, in fact, given two options. If they were unwilling to consent to a lobotomy, Caren would remain in the dark ward…
Continue Reading
In the 1960s a Lobotomy Was the Only Option for Caren
Lisa Stockmann Mauriello began her petition to Biogen almost one year ago. In her letter to the developers, Biogen and Ionis Pharmaceuticals, Lisa explained that she has an inherited form…
Continue Reading
Lisa Received Her Long-Awaited ALS Treatment, but Is It Too Late?
source: pixabay.com
A study found on Medscape confirms that the human immune system and the human brain are the most complicated in our biological systems. The two systems are responsible for…
Continue Reading
A Study of Intravenous Immunoglobulin Used to Treat Multiple System Atrophy
source: pixabay.com
Over ten years ago two Nobel-Prize-winning biologists, Emmanuelle Charpentier and Jennifer Doudna, discovered a technology called CRISPR (clustered regularly interspaced short palindromic repeats). Bacteria contain genetic sequences repeated throughout…
Continue Reading
CRISPR: It Has Only Just Begun
source: pixabay.com
According to an article published in EuroNews, the National Cancer Institute has announced that MIT researchers have developed a device that can locate cancer cells during urine tests. The device…
Continue Reading
Nanoparticle Diagnostics: One Small Step for Researchers and One Giant Leap Against Cancer
source: pixabay.com
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…
Continue Reading
Compassion Corner: The Effect of Masking and Distancing on Doctor-Patient Relationship
source: pixabay.com
A recent article in Parkinson’s News Today announced that a new study indicates that high blood pressure has been associated with Parkinson’s disease in Singapore’s Han population. This is…
Continue Reading
High Blood Pressure is Linked to Parkinson’s Disease in China’s Largest Ethnic Group
source: pixabay.com
To the vaccinated, it may feel like the COVID-19 pandemic is finally over, but a convergence of the Delta variant, rising long COVID cases, a higher number of breakthrough…
Continue Reading
Long COVID Should Be Considered When Easing Pandemic Restrictions
As reported recently in Medscape, forty-eight patients with myotonic dystrophy type 1 (DM1), were identified by way of the DM-Scope registry, which is the largest collection of data for the DM population. The…
Continue Reading
Metformin May Improve Mobility in Myotonic Dystrophy Type 1 Patients
source: pixabay.com
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
Continue Reading
Compassion Corner: The Challenges and Barriers Are Universal
source: pixabay.com
According to a recent article in Genetic Engineering News, findings by scientists at the University of Boston’s School of Medicine and Massachusetts General Hospital (MGH) have uncovered two plausible…
Continue Reading
Scientists Discover That a Blood Pressure Medication Can Increase Immune-Boosting Cells
The symptoms of terminal pancreatic cancer are subtle. The disease is usually not diagnosed until it has substantially progressed, leaving a dismal five-year overall survival of five to ten percent.…
Continue Reading
The Weather Can Change in an Hour, But a Terminal Cancer Diagnosis Changes Your Life In Minutes
source: pixabay.com
The primary cause of death in melanoma patients is widespread metastases. Currently, there is no cure in cases of relapse or in advanced stages. A recent article in Science…
Continue Reading
Metastatic Melanoma: Chemotherapy and BRAF Oncogene Inhibitors
source: pixabay.com
Following several Patient Worthy articles on the subject earlier this year, Fierce Biotech recently published news that Biogen is preparing to release the Phase III VALOR trial drug, tofersen,…
Continue Reading
Is There a Right or Wrong in the Debate Between Patients and Manufacturers to Release Drugs Through Compassionate Use?
source: pixabay.com
The name of the organization is Disease InfoSearch. It is not only a resource for credible information but guides patients and families to valuable support groups and participation in…
Continue Reading
A Resource for Information About a Rare Disease or Related Organization
https://pixabay.com/en/exercise-jogging-man-person-1835032/
This question is what the doctors at Massachusetts’ Cambridge Hospital were trying to determine. According to a recent article in the New York Times, a twenty-two-year-old man was rushed to…
Continue Reading
If It Looks and Acts Like the Flu but Isn’t the Flu, Then What Is It?
source: pixabay.com
The patient sitting in front of this physician was later diagnosed with severe chronic fatigue syndrome (myalgic encephalomyelitis or ME/CFS). But for now, the patient had to endure humiliation…
Continue Reading
These Words Are Not Helpful: “Your Test Results are Negative. You Are No Doubt Imagining Most of Your Pain”
