Myalgic encephalomyelitis, or chronic fatigue syndrome (ME/CFS), can cause sustained, extreme, and often debilitating fatigue that does not improve with rest. Currently, no approved therapies exist for those with ME/CFS.…
Action CIND is a charity which strives to raise awareness for chronic immunological and neurological, or CIND, diseases. The organization was founded by Alison Rae, who lives with myalgic encephalomyelitis…
When it comes to rare diseases, many doctors simply just don't know the proper way to diagnose, monitor, and treat them. It's difficult to know how to respond to every…
Many in the medical profession believed that the road to rapid recovery in myalgic encephalomyelitis was through exercise. Eighty-two-year-old Veronica Jones of Gloucestershire, UK believes that the advice given…
According to a story from BBC, 28 year old Saskia James has struggled with myalgic encephalomyelitis (also called chronic fatigue syndrome) for years, which began with the onset of seizures…
According to a recent article, 82-year-old Veronica Jones is working to break the laziness stigma that surrounds a myalgic encephalomyelitis diagnosis. Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) Myalgic encephalomyelitis (ME),…
For the first time, a team of researchers measured heart rate variability (HRV) in those with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to understand how the autonomic nervous system (ANS) responded…
Frontiers In Medicine recently published a critical review by Maureen Hanson and Adam O’Neal of Cornell University’s Department of Biology and Genetics. The authors searched for the cause of myalgic…
According to a recent article in The Faculty Lounge, the opinion of its co-authors is that the long-held belief about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is seriously outdated. ME/CFS is…
The patient sitting in front of this physician was later diagnosed with severe chronic fatigue syndrome (myalgic encephalomyelitis or ME/CFS). But for now, the patient had to endure humiliation…
Currently, there are few - if any - ways to treat patients with myalgic encephalomyelitis, or chronic fatigue syndrome (ME/CFS). Rather than treating the condition itself, doctors often treat symptoms…
According to a post on WAMES (Working for ME in Wales), a recent study used a retrospective analysis to identify potential warning signs for a characteristic symptom of myalgic encephalomyelitis…
It's no secret that COVID-19 can cause lingering symptoms, some of which persist for months. In fact, there is a name for those who deal with the lasting symptoms of…
As COVID-19 makes its way around the globe, scientists are discovering new ways the infection will linger in the months and years to come. As reported in John Hopkins Medicine,…
Though myalgic encephalomyelitis or chronic fatigue syndrome (CFS) is more widespread than many people realize, the condition has few resources and no remedy. The disabling condition is complex, with no…
COVID-19 long-haulers, now called Post-Acute Sequelae of SARS-CoV-2 Infection, or PASC, have often been compared to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). However, there wasn't a study directly comparing these two…
As reported in Gloucestershire Live, Chantelle Parry has a few years head-start on an experience people emerging from this pandemic with symptoms of long COVID may be about to go…
According to a story from insidesources.com, many in the chronic fatigue syndrome/myalgic encephalomyelitis community has been very grateful for the news that the National Institutes of Health (NIH) has committed…
According to a story from PR Newswire, Solve M.E. is gathering virtually on Capitol Hill for its 5th Annual Advocacy Week, starting April 19th. A record number of people are…
Welcome to study of the week, a new series from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is…
by Lauren Taylor from In The Cloud Copy Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition in which the affected patient has overwhelming fatigue that does not improve even…
by Lauren Taylor from In The Cloud Copy Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complicated and debilitating condition in which affected individuals are unable to perform their daily activities…
by Lauren Taylor from In The Cloud Copy Gulf war illness (GWI) is a chronic condition that is considered multi-symptomatic, meaning there are a wide range of chronic and acute…
A recent study published in the Journal of Translational Medicine describes an accurate and objective approach that aims to evaluate the severity of myalgic encephalomyelitis, also known as chronic fatigue syndrome. This…
For patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), post-exertional malaise (PEM) can be extremely debilitating and disruptive. PEM occurs when symptoms worsen or become more severe within 12-48 hours…
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